being confined to a bed.

Catsr I never thought about that one. I guess that would be my worst too. I definately would not like to be confined to a bed.

I was scared of losing ability to walk & that has basically gone as use wheelchair outside.
Cognitive, that is a struggle now - learnt to use other things to to help me remember like alarms etc.
Speech - that comes & goes now, have learnt to talk slower & if I forget what I was going to say I just say that & most people laugh & say happens to them too so get away with it.
EYESIGHT is my fear - I know it is not as good as it used to be & my peripheral vision is very bad. I sort of allow for that. With this last flare I have gone blind in one eye basically, it is shut & blurred so cant rely on it at all. Thankfully the apple computer enlarges print with a touch.
Good topic.
I dont want to be fully dependant on others. Other thing I dont want to lose is bowel control, that would be awful. Already got a catheter bag. I would learn to deal with it I guess.

Losing my sight and able to walk

Cathy

Wow, that's the power of this place! I don't share many concerns with my friends and family. They just feel helpless , as do I. I am most concerned with vision and cognitive issues, too. I always was a team leader at work. Now I have days where I can barely keep up. Thanks for helping me feel like I am not alone!

1)My fear has always been that of the unknown. Sometimes I wish they would not have dxd me so early - I have had a dark cloud hanging over me since day 1 of dx. I still fear what will come next. 2) " Losing my eye sight because not being to see really would make MS worse dependence wise." If I lose everything, I want my eye sight to be last. Losing my mobility has been a major incovienence (understatement), but total loss of vision would probably incapasitate me. 3) Bladder issues.

Mobility wise, I have come to terms with my canes, walkers, vehicle hand controls, scooters and wheel chairs when needed.

Lynne, great topic! All of us at one time or another probably feel that no one else could possibly feel like we do. Now we know there are others who share our same fears.

I have had Optic Neuritis and that scared me to death! I don't want to lose my sight. I have been progressing to using the wall, a cane, a walker or a wheelchair for some time now. I know this is going.

My cognitive abilities have been slipping as well. I am fortunate that people in my family had been around enough people with MS that they understand and are patient with me. If I lose all cognitive ability, will I even know it?

Good Morning "lchoppel",
I too fear changes that may occur as this illness progresses - seems I have exacerbations on a more frequent basis - the duration between flair ups has become less, anyway.... I find myself unable to remember things that should come to me automatically - like how to get from one destination to another.... sometimes I really need to think hard about the route I'll be taking when I drive - something that did'nt happen previously, but seems to be occurring more frequently. To help my situation, my boyfriend bought a gps for my car, and this does help quite a bit - it's just the places that I frequent that sometimes confuses me as to how to get there when I have been to the destination so often - VERY frustrating! I just hope that I never become too lost, and if I do - can reply on my gps to get me home again! Take care "Ichoppel".
woodrow77

I share most of the same fears. But my biggest fear is my daughter getting MS. She has been tested for MS and she does not have it but that thought is there. One of another fear is losing my eyesight and ability to walk. My MS was caught early so I am hoping that will never happen.

Loosing my ability yo walk & loosing my mental ability. I'm forgetting things already.

Talking,,I can be in any condition,,but I want to be able to comfort , joke, advice and tell how much I love my kids.

I fear getting more lesions and not being able to do anything about it.
I can't have a MRI ever again because of my pacemaker.
Nor meds for MS because of my heart. { steroids ect }
I'm on MY own w-o meds for this damn curse!
I fear the loss of walking and no muscle control.
I don't want to be more than a burden then I already am with my husband and son.
Good topic !
Silky ~

Something that I have never spoken of which is the thought that I will need assistance going to the bathroom, especially the clean-up, the thought of my partner having to do this just puts me over the edge.

I do think that these fears can be motivaitng, in so much as, to avoid these consequences it motivates me to do all I can to look after myself, work at physio etc, etc. And if it does happen I'll probably deal with it,like I have everything else.

Oh yes, the escalators mentioned by someone else in this thread, they terrify the be-jeebers out of me too. Sometimes on a good day I can go up, but not down, I have found that usually there is an elevator nearby - there are many people (not just us) that have issues using them I guess.

I was just thinking this last midst an argument that my damn brain started. wat if my cog fog gets worse? Its bad now imagine later im be like an alzheimer patient. wat if i cant walk anymore? Wat if my bf leaves me will i be alone? Would i have to move back wih my parents? I have trouble peeing now..with i need a catheter? I cant stand the thought of my young ass needing assistance with the potty dept.. ::sigh:: that place of darkness is just filled with so much sorrow i cant allow myself to be in that place long cuz its a scary place to be alone

I believe we all have a cross to bear, mine being MS, and generally, I'm ok with that. But my biggest fear is being my husband or son's "cross to bear" because of my MS. I fear I'm already getting there on bad days and it kills me.

As far as losing something personally, I would say losing my eyesight would be the worst.