Not being able to walk and dying alone.
Re cognition, my doc reassured me yrs ago that it isn't like dementia--MS cognition problems usually level off, so I don't worry about that at all. He was right.
Thanks for topic.

I feel the same way as you do. I forget things, and it seems to be happening more often. I don't want to be a burden.

My symptoms affect my legs.So my biggest fear is being just totally unable to walk.I can wall walk now so that is a blessing.

Not able to walk,not having the chance to tell loved ones good bye.

I fear losing my ability to walk and my intelligence.I've had too many of those really obvious brain farts lately, they scare the shit out of me.

I worry about the cognitive aspect too. I have several degrees and I am trying to finish another and am having lots of trouble. I have good days and bad days with walking so I don't think this bothers me as much as loosing my Marbles. LOL

I guess for me it is in this order eyesight, ability to walk and being able to drive and these all seem to intertwine with one another as they relate to each other so much and takes one life away that are my thoughts anyways
Take Care
Dave

Ohhhhhhh Lynne I can so relate to yours, I am so foggy now, I feel like a Oap already, but my eyes I dont want it to get any worse, I have no independence, and of course the same as most of you my legs, Scares the crap out of me to think of.......................sigh............
So I wont

My fears would be being in a wheelchair all the time, losing my eyesight, and being dependant on others. If I couldn't do anything for others, then my life wouldn't have much purpose, if any, and that would be awful too.

Losing my eye sight because not being to see really would make MS worse dependence wise.

oooo good topic! Being able to read what others fear, you find yourself feeling less alone. DSers we need one another!

So when I wander off to that "dark place", well there are a few concerns.

Memory. I try to say something simple and can't find the word. "Ya know, that .... I like to watch. That..... That..... a few minutes later.... that.... "movie"!!! That's the word! "Movie"!

Could be from turning 50, could be the MS, could be both.

Also, walking. I wall walk too. Using a well meaning person isn't so helpful, ya know the "play" in their bodies isn't solid enough. Has anyone ever had a person offer their arm and that person is a fraction of your weight and almost 20 years older? People can be so kind, but it can be even more dangerous for you both!

I also find prayer is the best remedy for that dark place. Especially a "thank You" prayer. It helps me sleep more peacefully.

'Like this topic Lynne! Thanks!
Your friend, Amy

ONE MORE THING!

Is anyone afraid of escalators??? They terrify me to no end! Tried to board one, and couldn't do it! No way. People were looking at me funny when I went up to one several times, turned around and said "I can't do it". I'd look at me funny too!

Escalators = now very scary!
-A xo

There are a lot of 'fears' that I've encountered during these years of MS.....I lost my coordination & balance years ago, got used to it....lost most of my speech...got used to that...lost my hunger pains AND sense of 'fullness"...got used to that....
For months now, I've realized that the 'brain fog' is very real (at least I can still REALIZE it)...and it scares me to think it will stay or get worse.....getting used to that is scary....
Those around me mostly have no clue that I'm really 'lost' sometimes and it's hard to describe....

I've been watching my mother's cognitive abilities slip away. She has dementia and I know I don't have to worry about that right now.
But, like Lynne, I fear how far this brain fog I have will go. I think seeing Mom go through this is the reason I fear this the most.

Second on that list for me would be losing my eyesight.

Fortunately I don't have any cognitive disfunction at the moment but I think the worst thing would be being aware that you can't think straight.

I had about 2 weeks when my hand writing went completely loopy. I could not understand a word I was writing and that scared me as my work depends heavily on my writing. I'm glad to say that it passed.

The book which I have detailed below is a really good read for anyone suffering from'brain fog'.


'Facing the Cognitive Challenges of Multiple Sclerosis'

Jeffrey N. Gingold

Demos Medical Publishing, 19/07/2011

'When attorney Jeffrey N. Gingold misplaced his wife on the living room couch, and became lost while driving just blocks from his home, little did he know that he was experiencing a hidden symptom of multiple sclerosis: cognitive difficulties. Facing the Cognitive Challenges of Multiple Sclerosis is a courageous and compelling personal account of one man's anguishing struggle with this aspect of the disease. It was written for the silent majority of MS patients who are privately dealing with MS cognitive symptoms and potential disabilities.'