Have you gone through all the tests (MRI, LP, etc)? What does your Dr. define as proof?

I have been Dx'd with both MS and fibromyalgia. I believe both are accurate. What tests have been done? Have you had a spinal tap? MRI with Gadolinium for contrast? evoked potential test? (i think that's what it is called. they glue on a bunch of electrodes and measure response times of nerves)
When we started thinking MS, I read a bunch of books about it. It was the other people's stories and experiences sounding so familiar that convinced me.
One difference between MS and fibromyalgia is that fibro feels better with heat - a hot tub or hot bath will relax the muscles. But with MS, the heat makes the nerve conduction issues from lesion scar tissue worse, so you feel like crap - weak and achey.
One point - refusing to believe won't change whatever the truth is. I hope whatever is going on, you get solid answers and effective treatments soon. Take care. 8)

Had testing. Spinal & MRI. Brain was found but nothing in it. ROFLOL Spinal fluid was just great. Not even a quart low! ROFLOL So, Dr. says that he is going by my history/symptoms.

That's really all I know. I have flares and I believe that FM is extremely similar in symptoms to MS.

My jerking gets really severe under stress and when weather gets really cold. I can't adjust my body temp and know that is a symptom of MS. If I get too hot I can't cool down and if too cold I can't get warm unless in hot water.

My hubby says that the water is too hot when he's touched it but it feels "normal" to me. Also, same with the thermostat. 85 degrees feels normal to me and if a cool breeze blows, I chill.

What are your symtoms out of the hot water? I become a noodle with a massive head ache. I have the brain lesions and yes I have Fibro too.

You need answers.

FIC, your story is interesting. I too have been diagnosed with Fibro. and my MS tests have come back normal so far also...well, my cervical MRI was questionable, but is being considered normal at this time. Anyways, like you, I have many symptoms of MS that do not fit in the category of Fibro, such as, the temp. intolerances, tremors, electrical shock waves, etc... My neuro Dr. is also still considering MS, but wants to keep following my symptoms before making an official diagnosis either way. Maybe she's thinking of another autoimmune disease also. If she is, I don't know what it would be, b/c she hasn't mentioned it. Just food for thought. I guess we are just those "subgroups of patients" that just don't fit the nice, neat categories of any one disease.