The scenario that you described happens to me often, in fact daily if not more than once a day. I just figured it was all part of the MS symptoms.

You falling are very concerning. Have you mentioned this to your doctor? Have they seemed concerned about why you fall? I would fall, just seemed like my legs were not there anymore and fall. That was one of my first symptoms that scared me. Please think about mentioning them to your medical team.

I've had scenarios like this for many years. Ten years ago my neurologist diagnosed me with epilepsy. My anti-seizure medication did not stop the episodes, though. I eventually stopped taking them with no difference. I was never convinced about the epilepsy because he would't give me direct answers as far as what kind of seizures I was having. (Petit mal, temporal left lobe, etc.) Last year, when I was pregnant, I had a similar experience and talked to my OB about it. He said it sounded like vasovagal syncope which is common in pregnancy. I did some research and found that it is often mistaken for epilepsy.

I'm currently seeing a new neurologist and getting a second opinion about everything. I've had MS symptoms for years now and have been to my neurologist repeatedly but he always just increased my anti-convulsants. I finally got my PCP to give me a new referral because even she was starting to get convinced that it might not be epilepsy at all.

it depends on what activity im doing..for ex-if im up cleaning the house or cooking for too long i get short of breath super weak and tingly in my legs n hand .. if i go longer n ignore that nausea will come in the pain intensifies with the chest tightness n super weird feelings in my legs.. if im walking ill start to feel my leg drag a bit or trip alot.. if i ignore it n keep going i get super fatigued, jell-o legs n pain in my back n legs n sometimes cant walk back.. if im up all day on my feet without breaks or mmj i start to shake shiver whatever whole body goes numb with pain etc.. warning signs for me that its coming up weaknees tiredneess weakness etc for me..after i figured out these patterns i know when i need to take a rest or nap or meds or mmj to prevent my symptoms to go into overdrive.. best wishes

yes- i do it too- have to let it go, and give in to it- rest -and it helps it go away,some, but still that draining- its a bad feeling!! hugs!!!

Hello all,
I am having to use my phone to answer. It doesn't work like my computer as far as being able to answer each one of you personally becuz it only shows my post. However I know what you guys have said so I will try my best.

I do wonder sometimes about seizures since the eye thing is so uncontrollable and no matter how hard I try I can't make it stop.I heard from the neuro office today. They want me to see a general neuro first before I see the MS specialist. The neuro said that I do have symptoms of MS he needs to have something more concrete. I don't want to see the neuro he referred me to. I told his assistant this becuz I am afraid of neuros due to the one who made me feel like a fool 4 years ago. She told me I could see my regular doc and tell him all my symptoms and get an MRI of brain and spine. If they showed lesions then I could call her and she would talk to the doc and get me in to see him. So hopefully things will work out.

I can tell you that it does make me feel a little better to know that what I experienced was most likely warning signs. With you guys describing yours...well they definitely sound similar. I know I should have gone straight home after church yesterday to rest. I chose to ignore the extreme fatigue I felt right after spending 15 minutes fighting with all I had to keep my eyes open. But I went out shopping and came home and cooked a big meal. Well I woke up today feeling like death warmed over. I felt all over sick. I was extremely fatigued, muscles hurt all over my whole body..not just left side. Left side lymph node under jaw was swollen again ribs right under breasts were and still are very achy. Had to stay home instead of going shopping with my mom, aunt and cousin. At least I was able to rest...feeling somewhat better but toes are having a danceathon tonight and it is making my front of my feet hurt, left knee and hip hurtingand my legs and feet are moving to their own beat.totally can not control this either. vicodin helped earlier so I might take another one in a bit. all this waiting for docs is gonna turn me into a junkie!!

Thanks all of you for taking the time toanswer my post and share with me....Irish

" I began to feel very warm and the warmth spread through my whole body. Then I began to feel dizzy, nauseous and very lightheaded. I remember I could not figure out whether I was going to faint or not."

Oh yea, I get that all the time. As soon as the weird warm feeling starts I try to get to a sitting position because I have no idea what the end result will be (fainting, falling, sudden exhaustion etc). After panicing a few friends and family and having unnecessary amulances called, I have learned to warn people that if I suddenly sit down to just leave me be for 20 minutes and don't call 911.

Thanks Shelley,
WOW! I am happy that you feel the same exact thing! I mean I am not happy that you have to suffer through it...but it makes me feel justified because this happened again today right before the eye thing started again. The eye thing started and lasted like 20 minutes and like you, right after I was so exhausted I fell into a deep sleep that lasted for 2 hours.

When the eye thing started I mentioned to my mom and aunt that the eye thing was starting again and my a aunts response was to tel my mom to look at how cute her dog looked asleep on a pillow.And my mom said for me to try not to force my eyes open because it could make it worse. I can't believe how my aunt is acting about this whole thing I am going through especially since I was her biggest supporter when she found out she had a brain tumor and then went through a 7 hour surgery to remove it. Now 2 years later I am still her biggest supporter. Her own kids are not as understanding as I am. Sometimes I get so sick of so called caring family and friends.....thats nothing but a big fat ugly joke!!!

Thank you for the reassurance!...... Irish

Irish, I read the post you put about how you felt about your Aunt not seeminly caring. It made me think, about how we have one of those "invisable diseases". The kind that really throw us into our issues, and yet people around us don't "see" it. They often tell us "but you look good", or "you don't look sick".
I don't blame the people for their lack of understanding, I usually think "I hope I never treated anyone like that back in the day when I didn't know about MS." I figure, they really 'just don't get it'.

I am sorry you are having so many troubles with the issues. I hope you get the dx figured out soon.

I remember when i was about 3 or 4 my grandfather made a swing with rope and a peice of board on a car a frame... I was swinging and swinging pretty high... All of a sudden, the rope broke and i landed streight on my back.... Took a pretty hard hit to the back of my head.... And i have had severial back and head injuries since.... Guess you can"t hold a good girl down ha.... lol.. anyway... I am right with you on this something is not right... And hasn"t been for about eight to ten years now..... I just know that it is better at night when i go to bed... And when i wake up the next morning..... Sometimes i can not even make it to the bathroom...