wow, I'm sorry to hear all about this Crystal. If the seizure like episodes are coming more frequently, don't you think you aught to mention this to the doctor sooner than at the next appt, unless your next appt. is soon?

Since you obtained a copy of your medical records, why not ask the doctor why he didn't mention these things to you, unless you are not going to see this neuro any longer? I would definately take the records to the new neuro and see what he says about the comments.

Bless you sweetie. I hope you find the answers you are looking for, and soon.

The seizure like episodes do seem to be much more frequent in the last 2 weeks for no apparent reason. My second neuro is the one that marked me down for complex partial seizures but I'm already seeing a different neuro. I'm not sure when I'm going to be able to see this neurologist again. I tried to call and let them know my symptoms are bad again. The office said someone would call back but I never got a call from them. My darn GP is scared to touch my "mystery illness". I'm not really sure who I should be talking to at this point.

My biggest concern at this point came after watching an episode my boyfriend caught on my phone cam (didn't think about using that feature until this past week). I know what my episodes feel like but I've never seen them and I've always been to out of it to remember them well. My breathing sounds forced with decent pauses in between, it was kind of scary to listen to. My boyfriend said that this is how I always sound though and I have managed okay so far. Maybe it's time for a GP that is willing to help when I can't get to the neuro.

Hi Cystal, I suffer from seizures and one day a couple of years ago, I had a huge one at a woman outting. Here this woman was giving her testimony of brain cancer, and I lost control of my bowels , it was abarssing to say the lest. I went to my family doctor and she inform me to get a MRI and I did the next day. Admittly she sent me to a Neuro, and he was the ruddest person I have ever admit.

He comes in and says this, " Due to the 28 lesions on your brain, I am 99% you have MS". Just like that! However he would not treat me. I kept having more of them and the nerve damage gotten worst. I even went to MUSC and she to said that the lesions are due to headackes? Hello???

Finally after months after that I got the help I needed. They found out that the seizures are part of MS. There is nothing to be afraid. The good news is , if this is the same with you. Now there are things you need to now, and take some meds.

There are different kind of seizures. http://www.webmd.com/epilepsy/guide/types-of-seizures-their-symptoms . Most of mind are absense. I find that the heat exspecially humidty brings on my seizures and stress. My lastest EEG did not show seizure activity but did find out that my dimentia is getting worst. This too is part of MS. I will be praying for you. let me know what you find out.

Hi Crystal, Sorry you are going through all this without any help from Dr's & know what it feels like too.
With the seizure type episodes, that was a great idea that your boyfriend recorded it, see if you can get it on your phone as well so that you have a copy too. I had the same types of things happen & it was even witnessed in hospital but because the eeg showed no brain activity (the video did) they wouldn't dx epilepsy or give me anything for it. Eventually I got to a pain clinic & they are a godsend, they listened to me & I actually had an abscense seizure there in front of them & they put me on some epilepsy medications.
Keep persisting in asking for help as there is help out there. I was told by them & since by others that the seizures can be caused by ms & that wont show on eeg's a lot of the time.

Make sure you record when you have had the seizures, if you know you have had them any feelings, things you remember etc & esp if you lost control of bladder/bowels too. If others are around ask them for any details too, if possible get them to record them like your boyfriend did, that is an excellent idea (that I had never thought of). That helps when you go to your Dr. Go to your normal Dr & insist on some help.
Take care of yourself & stay safe.

It just ticks me off when the doctors dont tell you whats going on. Its as if you have to pull it out of them. I have tried to figure out why they consistently do that.
You go into their office to find out whats wrong, have some tests, and one would think that you wouldnt have to ask whats wrong but you do. That is the question you were attempting to get answered in the first place. Every time you do, why? We expect some response from them without having to ask.
Whats the reason? Do they want to prove how smart they think they are or do they just like to hear you ask?
I drill each doctor now because I know they will not freely tell me those things I should know.
Perhaps they don't feel we need to know? Do ya think that it?

Forgot to add, while I was getting so wound up being mad at doctors (in general) and what happened to you, that I wish you the best of luck Crystal. Hang in there.

i also have seizure like episodes. they last for a few seconds, i can feel them coming on and get scared, sometimes i twitch, my eyes get stuck, and then they're over. a few seconds. sometimes i fall asleep right afterwards. i haven't found anyone who also has seizures so it was interesting to read what everyone wrote. i had one in front of a neuro once but he didn't call it a seizure. anyway, i take kepra twice a day and it helps. however, now i've noticed if i don't take them i have the episodes more often. do these sound like the absence seizures you all have mentioned? never heard the term.