Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
ricanfemale30
Idk y but i find it harder to cope wit this bullshiet. im always in some sort of pain/discomfort..my cognition is wasting away i forget EVERYTHING lose everyhing..can barely pee cant sleep cant eat cant drive cant go out..always alone..mood swings numb fingers.. weakness and the list goes on n on. yes im truley grateful to still walk unassisted..actually very blessed but i prob should b using a cane. my anxiety is creeping up cuz of the boredom of being in the house all the time alone..im lost..alone..scared of my future..scared my bf will leave..scared ill end up in a wheelchair..scared of the pain..scared ill lose my mind..i cant hide my fears any longer..i keep a positive atitude but its not so positive as id like it to be. im a God fearing woman who asks for strength and courage every morning but yet i feel so alone..could use some prayers. i get thru the day praying for strength and faith to keep me from giving up...i needed to let that out...ugh idk..idk
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I just do not feel well and I really think that it's because I cried yesterday on my way to work about my Aunt who is in the hospital. I don't think that we will have her much longer. She is very frail. Now she needs help eating. So, this is the third time in a year that I felt this way after crying. I think crying releases toxins into my body. I also worked up a sweat at the gym...

Second, if you can't pee, see a urologist. They can teach you how to cath. That is what i do. I cannot pee either until I have a really full bladder but I cannot completely empty my bladder so I feel like I have to go 10 minutes later. I used to strain and that could cause a hernia. So I have to cath. It is easy to get used to and I have it much easier now. It is a much more pleasant way to go. i am always grateful that I cannot pee rather than peeing involuntarily. So us MSers seem to go one way or another.
Third, if you can't sleep, your neuro should be giving you something to sleep. MS affects my sleep and I have to take sleeping pills. I have for over 10 years and I take about the same amount so I haven't really built up a tolerance. And I don't walk or drive while on Ambien. Also, Zantaflex helps the spasticity and the sleeping. So between the two, i can sleep.
You will feel much, much better when you can pee, when you are not in pain and when you can sleep. I feel terrible when I cannot sleep. I just do not produce any melatonin and I would never sleep if I didn't take something. That is no way to live.
If you were not in pain and got some sleep it might help your cognition. Best of luck to you. Please talk to your neuro about it.
For your loneliness, there is a MS Group Phone Exchange. There are about 10 people on the list currently that you could call and talk to friends. Please look under Fun and Games, Phone Exchange.
PM me if you want to talk. I'll give you my number. I'm home 24/7 and would love to talk.
Val
Have you tried doing some exercise? It does wonders for the mind and the body. It's good to vent. You are not alone. Hope things look a bit brighter this weekend!
I think life is a school room & while we are here we are learning. As well, I beleive in life after death, not an ending.
All this makes everything easier for me,
try deep breatthing.
Lorna
ever heard about LDN?
All of us feel or have felt like you are feeling now, like there is no hope in sight and it really does suck, but suck it up is what we all seem to do best and it sucks that is what we have to do. You always have had a positive attitude and like you even though it get harder to walk, like you I resist a cane or anything else that helps us walk or be mobile. You probally like me feel like that is giving into MS, but at some point we need to look at it as a tool that God has given us to help. I can take a lot of pain, but even with pain meds some days it is hard and thank God for his natural pain relief. MS is so different for each of us we can't pee or all we can do is pee. I can still walk, even though some days it is a chore all in its self, just like driving. I'm sure your BF must really loves you as he is still there so you should let go of the stress of him leaving you. All we can do is pray that some kind of relief is around the corner to make our lives better. I'll make sure to keep you in my prayers as I do with many others here and hope you feel better soon and get some relief.
Take Care
Dave
Without reading too far into your responses... do you have any church support? Can you even get to church?
Congnition, I use a Nintendo DS and play Brain Age plus other games along those lines. I am a forgetter. Big time. I've always been a sort of chowder head, but at one time it was getting worse.
Plus to this end, I am a big time list writer. Not sure if that helps me or hurts me. But I get stuff done when I have a list.
Be blessed my friend!
Prayin' for ya.
Amy
And like everyone tells me, we are here for you anytime dont shut yourself away.
One thing that has helped me is to let go of the big picture for periods of time. So you can't muster enough positive attitude to feel good, ok, but can you muster enough to push through 30 minutes of yoga? Start small. Look at the moment in your in and what you CAN do with it. I plan on opening a thread called "Small Accomplishments that make a difference" after this post to give examples of this. Sometimes, those small accomplishments carry me through.
My thoughts are with you. Hope you find some light at the end of the tunnel soon.
Cathy