I have finally been offered some help & thought I would share & see if anyone else has heard of it. It is a minor surgery where on the face the Dr does an injection into the nerve that connects from the eye down to the jaw line & stops the spasm dead & the pain in that side of the face.

It is a permanent one & your face on that side is dead to feeling pain.
You can still eat, smile etc, it just stops the the pain.

I was fortunate (?), if it can be seen that way to have a really bad spasm on the left side of my face which caused me to grab it & swear (LOL) while I was in the neurologist office. He saw how painful, often & disabling that was for me.
I don't know how long the wait will be but it is done in day or overnight surgery depending on how I go I guess.
I am just glad there is hope there.
It's weird as the right eye was the 1st one to go but when left side went it has been more painful from start & went right to jaw line instantly.

Just thought I would let others know of the hopeful treatment for at least part of it & to see if anyone has had it/been offered it or any feedback.
Don't want to jump in if others have negative feedback or not lasting or anything or in reverse hopefully good please too.

Now for spasms & Botox. I am currently on 25mg x 4 times a day & it is going to be gradually increased to 125mg a day, main increase at night. Then also looking at the Botox implant to give me a larger dose. To start with they insert a trial one to see if I tolerate it. Then if I tolerate it the full one's inserted. It is very close to the spine & similar to the spinal tap.

To me it sounds like 2 forms of relief for sure although realistically there will be a wait on all of it.

Any feedback on these please, I know we have had a thread on Botox before but wanted to put it out separately.