Multiple Sclerosis (MS) Support Group

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Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

Tremors

frusciante
frusciante
Woke up this morning with, what felt like detox symptoms.
Lol that's the only thing I could think of to compare it to.
I am shaking up a storm, so I am really lucky I can type this out right now, and with no typos....sort of? But it's hard to get my fingers to focus on each key

How many in here wake up like this or live like this?

It comes and it goes, but today is just unnerving...I feel like Im having a panic attack, but there is no anxiety.
Just feel like, I dunno, my body does not like me today?


Took my son to school, it wasn't hard to drive but my head was constantly flinching/twitching
ARE MY NERVES SHOT TO HELL?
I hear you can take Klonopin to settle the nerves, but being as I am a recovering drug addict...that will not work for me.
I doubt I need anything as of now...it's just weird, and as I have said, unnerving....that seems to be an ironic phrase to use right now lol

Anyway, hope you are all having a good day and MS is NOT interfering TOO TOO much ;)

Much Love,
Cassie
lchoppel
lchoppel
I too suffer with tremors, but do not take anything for them. I just struggle through them, and fix my mistakes as they come. Here's wishing you a beter day tomorrow!
frusciante
frusciante
same here!!
almairis
almairis
Hi

You can learn from pt or ot fine motor skills movements, it helps a lot.
ezone
ezone
Tremors were my 1st symptom when I was 13. They were minor but noticable. That is when I figured I got MS. I hated the tremors. No one in my family had them. I started drinking at 18 and they went away. When I stopped drinking, I saw a doctor about the tremors and got a low dose of propanolol (sp?). Propanolol is for high blood pressure but I took a very low dose (10 mg.). A drug to treat a disease is different than using to abuse.
I stopped taking propanolol due to low bp and tremors are not a problem anymore. I hope you find something to help you. I do not know why my tremors went away but am happy about it. I sympathize w/ you.
ezone
ezone
Propanolol is a drug option. It is not an addicting (not to me). It is an old generic drug for high blood pressure. I only stopped because of my low bp but that could be because of fish oil supplements. You take it in low dosage. Look it up. It helps the nerves, but my tremors were nothing like yours. You may have to take Klonazpam.
deleted_user
deleted_user
my head used to jerk to one side. i don't know if that's a tremor or not. its quit now and i had forgot about it until you mentioned this. wow. another ms problem i had forgot about.
ZhenyaR
ZhenyaR
Tremors are annoying: can't shave, cut nails, brush teeth, etc
Eating and drinking is hard too. Isn't there any treatment other then pills?
ChrissyH
ChrissyH
I have tremors, but not to the degree ur describing. The meds I take to help r Xanax & Primidone. Both r VERY LOW dosages. There r mornings where putting my contacts in seems almost impossible.

OT as well as PT have great exercises that strengthen the muscles & reduces tremor.

Best of luck to u.
mixedupmelly
mixedupmelly
Sadly that is my norm. My doc said the nerves are sending signals to the muscles and its causing contractions very similar to epilepsy. I'm on 1000 mg keppra 2x daily and 50 mg topamax 1x daily and it helps. I've gone crime looking like I have advanced Parkinson's disease ans almost screaming from muscle spasms to little bit of shaky when I'm tired and seldom having spasms.I'd recommend you research keppra, it's a newer class of drug, it has fewer side effects and its non narcotic. You do have to titer up or down, but only because it can trigger seizures if you stop abruptly.
deleted_user
deleted_user
Klonapin would be out out for a recovering addict --Propanolol would probably be ok. I find little wrist weights helpful sometimes. The light weight of a hat can help with head tremors as well, and one of those neckbraces you get in the drugstore for whiplash can steady your neck. The Essential Temor foundation www.essentialtremor.org has lots of suggestions that also apply to MS temors (I used to get their hard-copy newsletter, and found that helpful, too) Sadly, WeMove is going out of business, but their website with helpful links is going to stay up until the end of the year.http://www.wemove.org And oh yeah -- when you have tremors, try to keep something in your car ( a doctor's letter, a doctor's bill, a medical alert bracelet...) so if you get pulled over for a broken tail light the cops don't start giving you a hassle for being drunk or high!
deleted_user
deleted_user
Tremors just suck. I explained to my husband and my Dr. that I feel like I am holding back a huge tic that wants to come flying out of my body. It's so uncomfortable.

I do take klonopin but it doesn't help that, it is beneficial for my anxiety, and heart palpitations.

frusciante, can you take Low dose naltrexone? I take it at night and other than vivid dreams which I am learning to tolerate (haven't been on it long enough to know if those will last) it is really helping me sleep and wake up without the major tremors I had before.
ChrissyH
ChrissyH
MargareT .. u r so right about the med bracelet. My husband is a police officer. He has helped other officers understand how MS affects driving. Many of the officers check for possible MS unless it is very obvious that the driver isn't drunk or high.