Multiple Sclerosis (MS) Support Group
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I went to the neuro yesterday and I finally got at least one answer. He said that my seizure like episodes are actually tonic spasms. I researched as much as I could about it online this morning. Everything I found says it is most often found in MS, so I thought I would ask about it here. If anyone has any information about tonic spasms or any experiences they would feel comfortable sharing I would greatly appreciate it.
My neurologist still won't commit to a diagnosis but he came as close to saying MS as you can get without actually saying it. He said "in neurological diseases like multiple sclerosis...". He also told me that in "inflammatory diseases" pregnancy often reduces symptoms because the body naturally produces steroids that help the immune system and he thinks that is why I'm feeling better. When I directly asked him if he thinks I might have MS he danced all around the question, it was very frustrating. He wants to wait to see me until three months after I have the baby unless I end up having a relapse during my pregnancy. So I will have to wait for my diagnosis but in the meantime I'm happy that I'm feeling pretty good and I'm glad to have at least one mystery solved.
I hope everyone is coping okay with all this heat! Thank you all for any information, you are all always so helpful and supportive.
Crystal
My neurologist still won't commit to a diagnosis but he came as close to saying MS as you can get without actually saying it. He said "in neurological diseases like multiple sclerosis...". He also told me that in "inflammatory diseases" pregnancy often reduces symptoms because the body naturally produces steroids that help the immune system and he thinks that is why I'm feeling better. When I directly asked him if he thinks I might have MS he danced all around the question, it was very frustrating. He wants to wait to see me until three months after I have the baby unless I end up having a relapse during my pregnancy. So I will have to wait for my diagnosis but in the meantime I'm happy that I'm feeling pretty good and I'm glad to have at least one mystery solved.
I hope everyone is coping okay with all this heat! Thank you all for any information, you are all always so helpful and supportive.
Crystal
MS is an autoimmune disease caused by the immune system, downshifting of the immune system during pregnancy cause a "natural remission" up shifting back to normal after pregnancy and often overshooting for a while before a return to normal causes a woman with MS, ms to be more active than before pregnancy for a while until the immune system finds its normal again.
breast feeding seems to cause a continuance of the "natural remission"
woman who didn't know they had ms are often diagnosed after pregnancy, woman who knew often have more relapses after pregnancy & breast feeding is complete...
so your on tract to be very quickly diagnosed soon with MS if its ms causing your issues. Are you planning on breast feeding?
They tried me on Keppra when they first thought it might be "true" seizures but it didn't work. I've had this for five years with no relief. Do you know of any other possible treatments?
I'm kind of worried that I might have some progressive form of MS because I have had residual effects after both of my relapses/episodes. It also seems like I've never really had a true "break" from symptoms if these really are tonic spasms and related to MS. I always have symptoms and then just some periods of time where it's worse.