absolutely. That is exactly why I'm here. I was searching the internet about lightheadedness and MS. I had signed up for this site long ago and forgot. So grateful I found it again.

I've been taking Dramamine and it helps some. I have a neuro appointment Thursday so I'm anxious to hear what he has to say.

It's getting hotter and hotter and it's horrible. We are at 104 today and increasing through the week. Even inside I'm having the lightheaded stuff going on. It is so not fun!

Take care

The heat is the worse for us who have MS!. I can honestly say that Winer, late Fall and early Spring are my 3 most favorite seasons. As soon as it heats up and gets humid, my body shuts down and my MS symtoms become more pronounced. Meclazine or Dramamine do help with vertigo or bouts of dizziness. So does a cooling towel around the neck and jugular vein if you have to be out in the heat. Make sure to drink plenty of water all year long and do your best to avoid being out during the heat of the day. I wish you all my best!

I agree. The heat definitely brings about more symptoms, including dizziness, extra fatigue, etc. I tend to have to limit my outdoor activities to the early morning, and even then it can still be overwhelming since I live in FL.

I feel that I am lucky to live in Alaska. I only have to worry about heat for 6 weeks or so.

It is a lot worse in the summer time. For the second year in a row, I have called my doctor for prednisone this week. I realized once I got the prescription, that I tend to have flare ups in the summer.

Good luck

I love the winters too. The heat is so very hard to take. I have noticed that the percentage of humidity and the barometric pressure, along with elevation make a huge difference. When I'm visiting my home town which is about 300 ft. higher in elevation, I feel more able to move around better. When I first wake up in Florida, sometimes the humidity is very high but it seems to burn off as the morning goes on.

I have some weight to lose and am confident that it will be easier to move around once the extra baggage is off of my frame.

I did try the Levis trick of freezing the blue jeans and although I will always was my jeans, I did get a kick out of putting on some freezing cold jeans. It lasted only a few minutes but it was fun, lol.

The National Multiple Sclerosis Society seems to have some ideas and I know they used to provide some freebees. http://www.nationalmssociety.org/Chapters/COC/Find-Resources-and-Support/Services/COOL-IT

Thanks so much for sharing and good luck ImPenny with your nuro visit.
It was nuts, I bent down while outside, stood up at a regular speed and Woosh - a full headed wack that subsided but stayed for several minutes. No fun!

I used to love the summer months. Those days are over. Heat and humidity are my enemy. I used to sit in the sun getting a suntan. Now I have to stay in my air conditioned room in order to survive. When the weather becomes hot and humid I become weak and speaking and breathing become difficult. All we can do is try to stay hydrated and cool. I believe that my MS became worse because I did not realize how dangerous the heat can be.

I'm EXACTLY like BklynladyMS! Those were, what I thought to be, the good old days!

I can not function at all in the heat. I become so unresponsive that I can hardly move. My body does not obey the signals coming from my brain! Stay cool and hydrated my friends!

No kidding! As my Harvard neurologist said "the heat shuts your neurons down"! Add a little humidity into the mix and I am a goner. Beets with the East Coast, I hate it. I'm in Kentucky now (formerly Philadelphia which is not much better) but it is bloody hot and humid. I cannot justify living my life indoors because it's too hot or too cold. It's not healthy for my brain or my inspiration to do anything. I am happy as a clam in Hermosa Beach or anywhere in that part of Los Angeles. My husband promised "Santa Barbara" when he gets to his fellowship before I had MS. I have 3 more years to sweat it out but living for that day when I can have a real life outside doing all the things I love. My license plate reads "OH2BNLA" which it had way before I had MS. I'm not changing my plates in KY either. It's the sweetest thing to look at:) , it's all I have to look forward to. To Kentucky's credit, I've had a few Hermosa Beach days that were to die for. I was outside, playing with the dog, planting flowers and living life! If only they would last.

YES! Heat is definitely my enemy! And I am looking for recommendations for dealing with it when you HAVE to be out in it. We are taking 2 of our granddaughters to Disneyland in July. For MY convenience we are splurging and staying at the Disneyland Hotel. When I get too hot and/or tired 'home' is just a monorail ride away.
But I'd like to stay out as long as I can. I know about cooling cloths and handheld fans that will also spray water. Those neck wraps you just dip in water make me 'clammy'.
Any other suggestion? (I am renting a scooter.)

Yes! I try to avoid the heat if at all possible! I always carry dramamine with me, which helps with the nausea. Staying well hydrated always helps me too, but I tend to avoid this if I'm going out because I have bladder urgency...

I am right there with you! I live in Texas and I can tolerate the heat, but when it is humid, I am done. Even if it is not that hot, if it is humid, nothing wants to work, especially my legs. I will get a bit light headed and my legs get wobbly. I thought the barometric pressure used to just both my arthritic knees, but then I got MS. No Bueno! I am only 40, but most days I feel like I am walking around like old man Jenkins.

I not only get hot but my vision spots up and blurs until
I can cool off and none of the medicines work
well enough so during summer months I become
a hermit and wait for fall.

A slight detour on this subject. Yes, I get dizzy.... almost anytime. It was one of the symptoms that got me my diagnosis. I also get shaky with heat and fatigue. Does anyone notice this? Right now the fatigue is my worst enemy. Maybe I'll start a whole new tread for this. Thanks guys.