Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

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Squeemom2 10/18/2012

Was just going through and updating my symptom list from the last 2 years and I can't believe how much of it that I've already recorded sounds just like MS. In all of my research and "self-diagnosing" I never gave MS a second glance. I've been convinced I had Lupus, Lyme Disease, Sjogrens, and several other things. Not sure why MS never occurred to me.

Obvs, I'm still undiagnosed but now that I've had my first documented and severe CIS, I just....wow. How did I not put 2 and 2 together?

Will still be going for a second opinion but I think it's becoming increasingly clear.

I might be here to stay you guys. Hope you like me. ;)

djbritt 10/18/2012

This group has some wonderful people here. I am sorry that you have been suffering so. I am glad that you are getting a second opinion. Have you had any MRI's done on the head and spine yet? I hope it all goes well for you.

Squeemom2 10/18/2012

I've had a brain and Cspine MRI. The brain MRI showed one old small lesion. The neuro could not for certain that it was caused by MS. The Cspine MRI was normal. I have also had the LP. It was positive for O bands.

deleted_user 10/18/2012

We certainly hope you stick around (: Not b/c we hope it's MS but YES we like you... !!!
MS is such a tricky disease to Dx and no one really understands. Some have many lesions and function normally with treatment. Others (like myself) have tiny scattered brain lesions and lots of symptoms.. My LP was negative.. Everyones experience is different but most of our symptoms are the same and we all relate. We're a great support family- Welcome...
Hugs
Stacey

lchoppel 10/18/2012

One small lesion can make MS. It is not the number of lesions one has that determines the level of disability. A person can have one lesion and have progressed significantly compared to another person with 10 lesions who has no symptoms.

Also, testing postive on the LP sounds suspicious to me. I really think you need a heart to heart with a neuro about these test findings. I don't know why so many doctors are slow at dxing MS, but they are. It's like giving out a gold metal or something.
Early treatment really determines the future disability for the individual. I would want to have my doctor get me on disease modifying drugs soon, in my opinion. Get that second opinion soon.

We like you, so you can stick around regardlesss of your dx! Good luck.

Squeemom2 10/18/2012

I got an appointment with another neuro in our area. Everyone keeps recommending him to me. The two other women I know with MS are patients of his and he started them on treatment immediately, even when the diagnosis was just clinically isolated syndrome. And they are both doing really well. I see him on November 13th. I hate my current neurologist so I'm really happy about this.

Bon67 10/18/2012

We don't like you, we love you! Even if it comes out that I don't have MS, I'm not leaving this site lol.....the people here are amazing and I feel so lucky to of found them. I wish we all lived in the same city lol (((hugs)))

ezone 10/18/2012

I am glad you are seing a top notch neuro. And this site is Very supportive so Please Stay w/ us no matter what! I hope you get your answers soon for your sake. Best, Esther

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