mornin Sue, part of our awareness campaign will be 2am parades LOL good to see yer up

Hey Sue! Sorry to hear you're having such a difficult time. I can relate. I'm 44 but feel at times I am more like 80. The bladder and bowel issues I have recently experienced - I try and laugh about it now but the first time it happened I was in the car on my way to a friend's house and when I realized what had just happened to me - I just couldn't believe it. I was SO MAD! All I could imagine was having to wear diapers in the near future. I mean, the bladder thing - well I chaulked that up to getting older - and have used that excuse forever - but the bowel thing really brought it to light. Or sitting on the couch for a while and doing a "header" off the couch because when I tried to stand up my body went forward but my legs didn't move! Luckily no one was home to witness this comedy. As for cooking - well, there just aren't many times I have the strength to cook an entire meal - so I've resorted to the really easy stuff. Not very healthy, but easy. It's so exhausting.
Have you talked to your doctor about your problems with sleep? Lack of sleep.. could this be adding to your fatigue? I know if I don't take a little cocktail of my klonopin, xanax, and muscle relaxer I won't sleep at all. Here's hoping you get more restful sleep - and try to find some humor in all this MS mess. - Hugs - Christine

I had to give up all cooking except for the microwave. I only use it when I am right next to it.

There are crock pots, electric skillets, stove top cooking.

I wiped down the parrots cage this morning, from my wheelchair, & had to stop. Just worn out. It is too much to run a cloth over some bars.

your not alone hon...grin... hell on thursday nite i thought i would give my husband the nite off and cook frozen pizza for dinner...sigh... burnt the damn things because i read the box wrong... used to cook all the time...now i cant even cook frozen pizza..to top it off when i took it out of the oven... apparently i burnt three fingertips..blisters and all...never felt a thing...sigh... gotta love that numbness...smile.. sometimes it comes in handy for pain...grin..

hang in there hon

hugs
heather

Hang in there. I went through a time when I wasn't able to cook, because of all the standing and getting confused with the reciped. Now I can cook simple meals. The crock pot helps a lot. I'm still trying to get enough energy to clean the whole house in one shot. This should make you laugh...I was folding a load of laundry 3 days ago but I kept letting my mind wander and getting distracted. I just finished it today.

hang in there Sue.....
I know were you are right now but thank god it has come and gone. thinking of you.
hugs
april

Hi AusSue, I would definitely go back on some kind of drug therapy. Rebif seems to be working for me.
I used to have high blood pressure and I tried many kinds of medications until I found one with few side effects 3 years ago. You can't give up on the meds. It looks like the medical community is making progress in fighting MS. Praying for you, keep the faith.

Sends lots of *hugs* You are not alone.

Thanks everyone for your responses & understanding. It sure helps to be able to let loose on here & be understood. I am waiting to go on another medication but have to wait 90 days after a trial drug so that it is out of my system. Hopefully I will be suitable to go on Tysabri when it is approved here next month - fingers crossed. Will leep you update when anything happens.
Thanks again Sue

bladder issues are the worst, for sure. after a week of LDN I felt that IF that was the only thing it ever helped me with, it was worth it. now that tysabri's showing to cause melanoma, maybe more will try LDN first like NTK did

microwave and crockpots can be very helpful. thats how i started cooking sgain.there was a time i couldn't do anything it seemed but now i can do anything i want albeit i do it somewhat differently. i just figured out how to do it my way and on my time. i don't consider myself disabled but differently abled. and i usually get the same end results as the way i used to do it. hope this helps. we all know life throws curves but ms throws challenges your way on top of the curves. lol lily