Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I am up for hearing any and all tips and tricks from users. I was also wondering if you send you any freebies (other than the auto-injector)? I love freebies. :-)
Rebif had sent a messenger bag, a jar/bottle opener device, a sharps container, a hard case for the injector, and a smaller hard insulated travel case to hold your shots with a travel sharps case. They also sent a dry erase chart for the refridgerator to keep track of your shot locations.
So far I've only received the auto-injector with a soft case. My meds haven't arrived yet.
Best wishes to you Laurelvo!
Do your injections at the same time each day. Try to tie it to something that you do regularly so you will remember. For me I found the best time was at night right after a shower but just before bed. I put a cold pack on for a few minutes after the injection.
When I first started the injection site would itch and burn for about 20 minutes but now don't even notice it. I really haven't noticed any other side effects.
When you speak with your nurse at Shared Solutions request a lock box, travel case and hot/cold packs. You can also ask for another auto-ject if you need one. The lock box is a metal box with lock and key that you is handy if there are children in the house. The travel case is great for trips and can hold the auto-ject, 10 -15 syringes and a hot/cold pack. It also has a spot for you put your prescription label that is need for flying.
As for disposal, each state is different. You can check with your local health department or use the CDC site http://cdc.gov/needledisposal/ and look up your state.
Once you get into a routine, I am sure you will do fine,
I still tend to swell up and get itchy - it's particularly bad in certain spots (usually my stomach). The welts can last for a couple of days but even so, I've sort of gotten used to it. I'll be honest, there are still many nights when I complain about it and try to convince my dog that he wants to take the shot for me :) But I never felt sick and didn't miss a day of work which was really important to me.
They'll send you a soft ice pack (and more if you ask for them). The travel boxes I have hold 5 needles so I had them send me an extra one as I usually travel (when I do) for a week or so. They also sent a backpack (in my basement), a soft travel case with a hard ice pack, the autoinjector, a needle cutter, and a book to keep track of your shots. Nothing super exciting but my nurse told me that people love to use the soft travel case as a lunch box :)
I only took Copaxone for about 9 days, as I started getting itchy and hives. My doctor pulled me right off of it. I didn't get any freebies, except a binder to hold all my Copaxone literature in it. Nothing fantastic!
I took the shot every night before bed too so I could be consistent. I'm glad now that i'm off Copaxone due to the permanent dents that it makes in your skijn.
I take my injections every night before bedtime. The auto injector is wonderful. I am not scared of needles but it sure helps when It comes to sticking yourself everyday. The only reaction I have had to Copaxone is a red spot where it was given. It will go away in a few hours or the next day.
Good luck in starting your new med!