Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Seeking help for depression doesn't mean that you're giving in to it. Instead it means you're strong enough to take charge of your well being. Because the research shows that depression doesn't just clear up by itself, the sooner you begin to take care of it, the sooner you're going to feel better. Call your doctor and get some help for yourself. Depression goes hand-in-hand with MS and is treatable. Good Luck and many {{{HUGS}}}
It is true, I had never experienced depression before MS. After my symptoms began I found myself in a dark hole I could not climb out of on my own. It took a good friend to recognize the signs of depression in me and suggest seeing my doctor about it to get me headed towards the light again. My doctor put me on antidepressants and suggested I speak with a therapist. It worked well for me. You do not have to suffer with depression, it is treatable!
Hugs, Cathy
He said that if I was depressed but there was no reason for me to be depressed, that depression at that point would probably have an organic cause related to brain degeneration. He said to ask myself, if I felt depressed, whether there was a reason for it... you know, depressing life events, etc. In that case, if there was a good reason to be depressed, he said that that sort of depression was probably not MS related.
What the??? Okay, I have MS. That is reason enough to be depressed right there. That doctor's reasoning was completely insane. Anyone with MS has a reason right there to be depressed... and the complications MS adds to life, organic or otherwise, are often even more depressing.
I've often thought that if I just had the MS to deal with, I would be able to summon the strength to get through it... but as you mentioned... we have so many issues to deal with. If we are in a marriage or relationship, there is always a fear looming over our heads that perhaps our loved one will leave once the MS gets "bad enough" or we become too much of a burden. So, instead of just worrying that we might wake up tomorrow with one more layer of difficulty added physically, we always have to worry how MS will impact our relationships, our emotions, and every other area of our lives.
You mentioned your sister who has a perfect life. If everyone understood how heroic it is of all of us to be stuck in bodies that don't work (and continually get worse) and how brave it is of us to just keep going... perhaps we could all let go of the dreams of a perfect life... if we felt understood and respected for the challenges we face. But, that is one more complication MS adds to life. People associate energy and ability with moral goodness and attractiveness... so while we are stuck in the physical challenges MS creates, we also have to fight the human tendency everyone (including ourselves) has to see us as weak and unattractive. We have the almost impossible challenge of having to see ourselves as worthwhile in spite of MS and often without outside reassurance.
Once we get there, valuing ourselves as good and brave and worthy and lovable, in spite of our disease, appearance, and lessened ability, others in our lives will be more likely to agree with us. But it is hard getting there... to the point where we have a calm acceptance about our disease, our worthiness, and our desirability in spite of it.
We might be creating a burden in many cases. It would be better to not be disabled and have to ask our loved ones to accept that. But, we are all worth it... the effort it takes to deal with this difficult set of circumstances.... and the effort it takes to love and accept us. I used to look to my husband for reassurance, but he is too scared to give it. I have had to muster the courage to see myself as worth the effort and worthwhile no matter how disabled I become. Now that I do, my husband seems far less fearful and far more loving... which is really reassuring. I have a calm acceptance about myself and I think that he's lucky to have me, no matter how bad the MS gets.
And then, on top of that, we have so many dreams lost to this disease. You mentioned wishing you had a child with the man you love. I bet all of us could make a list of dreams MS has stolen from us. It is sad, but please don't ignore your loss or your feelings. You will have to deal with your difficult feelings in order to come to any level of acceptance and peace. If you feel like you have to quickly ask for forgiveness for being selfish, you may never get to the grief you feel, and need to feel, in order to let it go.
When I read your post and how you kept saying that no one understood, I kept thinking, "I understand you! I totally understand exactly what you are talking about!" You asked how you would be able to get a grip when no one understands. We understand you here, but I don't know if anyone without MS (or other disabling issues) in your life will ever understand, really. For me, the strength and understanding had to come from ME alone... and no one else. My husband will never understand but I don't fault him or even my disease for that. Our life is together but our individual journeys are different and separate. He has his challenges and I have mine. When you learn to see your beauty and worthiness... and you do have so much of it... the people in your life will fall in line with you.
I wanted reassurance from the outside. I wanted my husband and loved ones to tell me that I was so brave and amazing in my fight with MS. I wanted my husband to say that our marriage was stronger than the MS is... but the MS to him is foreign... and to me it is the most intimate and unfortunate thing I know. Actually, it is unfortunate for him too... he fears that it will rob him of the wife he has lived with and loved for over 22 years. He might wake up one day and realize he can't do it anymore... but if he does, I will be okay. I'll be sad and have something else to deal with, but I will be okay.
MS is really awful and there is no easy way around it. We have a burden and challenge to face that few understand. Just know that we understand you here. Good luck to you. I hope you feel better soon. :)
Good Luck
Dave
I refused to go on any traditional meds . Consulted my nutritionist, she advised the following and those herbal things have actually helped. If you decide to try any of it I would advise putting drops in to the boiling water and waiting for it to cool down (so alcohol can evaporate)
(by Australian Bush Flower Essences) Relationship Essence; Flower Kapoc Bush; Dynamis Essence; Sturt Desert Pea; Dagger Hakea
Hope you feel better soon honey x x x x