Hi everyone,

I really have been needing to talk with yall. But by the time I could get to the computer I have been so tired.

Heres the deal. My left eye which has the problem of wanting to stay shut in the AM when I wake up for usually about an hour has been getting much worse. It is now staying shut going on 2 hours. I could not take my kids to school today because BOTH my eyes were shut and no matter how much I battled and tried to make them open they refused. It is freaking me out because the right one was always fine. I even put a lot of water on them and use lid cleanser and try to put dry eyes drops in them and none of it works!! I think what I have is called "blepharospasms" which just means "eyelid spasms." Plus the sun and a bright fluorescent room are literally killing my eyes now. I went to pick up the boys from school yesterday and the sun was very bright. I felt my eyelids quivering away and I looked in my side view mirror and my left eyelid was totally closed and my right one was partially closed. Well enough about that. Any advise or info?

Ok, heres another scary thing, I have been having double vision. It actually is coming is spurts. For some reason it just happens and stays for about an hour and then goes away again. Comes and goes. Not very often....yet. It makes me think of the progression of my eyelid thing. I have had that for well over a year and it used to just come every several weeks and then would only stay shut about 15 minutes or so. Now....well, you read the too long paragraph above. Does MS double vision come on and stay on or does it do like I described? I am trying to put together a "portfolio" of symptoms so that I can give them to the neuro when I finally see one. (don't get me started on that....lets just say the neuro person called me to say that they don't see people with fibro...(like I could care LESS about my fibro...Learned to live with that a long time ago...) and that they could help me with my headaches. I was so flabbergasted and confused that I actually started crying on the phone and told her about my toes, the MS hug, eyes, cognitive, etc...so anyway ball was dropped once again by my internists office and husband called them to straighten it out. My eye doc never even got the fax on it so basically I am having to wait another 4 or 5 days to get the OK for the visit.

Last thing. I went shopping for groceries tonight. I have been having pain in my left leg (everything is on my left) and up on the muscles and joints on my inner thigh next to the groin area. Well it was just a litttle pain so I thought no big deal. Well I had a huge list and it took me 3 hours to shop. Halfway through my leg was hurting much more and I was becoming very tired and hot. This is the thing I really really really need an answer for.....my lower back was hurting pretty bad as well and once as I was just walking along (luckily with both hands on the cart) I felt a sudden "feeling" in my lower back and my left leg just suddenly gave out on me. I mean literally. I would have fallen to the ground if I did not have both hands on the cart. I also noticed that when I wanted to turn and I would put my left leg behind my right leg to kinda "twirl" around I would also feel a sense of my leg wanting to give out. I actually began to notice that I was walking with a strange kind of limp almost like I was "pulling" my left leg along with me. I noticed that other people were looking at me and then would turn away real quick when I noticed them. I felt very embarassed. What in the WORLD was this? Should I be concerned about driving and simply being out walking? I have already suffered 2 "could have been deadly" head injuries and really do not need another one. I am not sure what is safe now and what is not. Why has everything (my strange symptoms) sped up so much? Please someone help me with this!!!! Thank you. Irish