Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This morning I woke up to a new relapse. I know it takes 24 hours of continued symptoms to count as a new relapse, but I knew this one was coming for days. I've felt it coming, I can't explain how, I just did.
I can no longer feel the left side of my head. It feels cold, but if I touch it, it's not really cold. The left side of my tongue feels different then the right side. The left side of my scalp can't feel being scratched but the right side can. I am in the midst of a relapse. Hopefully it doesn't get worse, but chances are.
A few months ago I posted that I was taking 10,000 IU of vitamin d daily, but stopped shortly after, after everyone said that's dangerous, or that I need to be only taking 400 IU a day.
I just want to post an article about taking high doses of vitamin D (14,000 IU) daily and what it can do for us.
http://www.webmd.com/multiple-sclerosis/news/20090428/high-doses-vitamin-d-cut-ms-relapses
Please stop putting down my ideas, they are as valid as every other idea. I have only had MS for just over a year, but I have experienced almost all of the symptoms that everyone here is complaining about. I have had it bad, and I have recovered. I think that my opinion is valid and should be considered before I am told no again.
I can no longer feel the left side of my head. It feels cold, but if I touch it, it's not really cold. The left side of my tongue feels different then the right side. The left side of my scalp can't feel being scratched but the right side can. I am in the midst of a relapse. Hopefully it doesn't get worse, but chances are.
A few months ago I posted that I was taking 10,000 IU of vitamin d daily, but stopped shortly after, after everyone said that's dangerous, or that I need to be only taking 400 IU a day.
I just want to post an article about taking high doses of vitamin D (14,000 IU) daily and what it can do for us.
http://www.webmd.com/multiple-sclerosis/news/20090428/high-doses-vitamin-d-cut-ms-relapses
Please stop putting down my ideas, they are as valid as every other idea. I have only had MS for just over a year, but I have experienced almost all of the symptoms that everyone here is complaining about. I have had it bad, and I have recovered. I think that my opinion is valid and should be considered before I am told no again.
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Usually I get a daily influx of emails on health topics. An article from Dr. Mercola really stood out recently though because it mentioned that fat cells have their own mitochondria. Not only was this the first I'd heard of this, he also mentioned that fat serves a purpose in our metabolism. Another new factoid for me. The bottom line for me was to appreciate that even our fat cells play a...
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I just do not feel well and I really think that it's because I cried yesterday on my way to work about my Aunt who is in the hospital. I don't think that we will have her much longer. She is very frail. Now she needs help eating. So, this is the third time in a year that I felt this way after crying. I think crying releases toxins into my body. I also worked up a sweat at the gym...
Keep up the good research. That's what I do too. It's what we've got.
Hugs,
~Lorrie
Best wishes to you,
EP
I am on 5000 IU myself and good amount for someone who is not sick is at least 2,000 IU a day. www.RAMSwebsite.net click "Vitamin D3"
One of the first posts I put up here was on that topic and I still try to get them their D WITH good fats ie fish or nuts.
If your D is low though (adults now) then it can reduce the amount of Calcium you absorb (calcium needed for nerve & muscle function if you don't get enough blood will pull it from the bones to help the nerves and muscles).
Vitamin D has anti-inflammation qualities,etc too.
Best wishes to you working with your doc to get your numbers up to NOT just boarder line normal (ie bottom 95% of population) but up to healthy ranges ie Vitamin D up to 75 or so.
I asked her about taking vit C tablets & she said the 2 vitamins that really relate to MS are VitD & B12. Which I am also getting B12 shots. So you might want to have your doc check your B12 levels too.
Best wishes!! :)
And yes, you are also right on re your views being as valid as anyone's here. I understand the feeling. I think that everyone should be respectful to each other's viewpoints and not lecture as to what is right or wrong. I will try to follow my own advice.
For myself, I take 4000 units of vitamin D daily and was told by my neurologist that taking vitamin D is VERY important for all of us, especially for those WITH MS, not just before we get MS. He says that we need a therapeutic level when he HAVE MS. My tested levels of vitamin D are very good and I think the reason why I am doing well.
The literature has been saying that vitamin D is important for people living with MS and IMHO probably all the auto-immune diseases. I have been taking vitamin D since I was diagnosed.
I also think that calcium is important as that link states, especially if you take steroids and are past menopause.
Thanks for your input, Smathie2.
I read an article that mentioned taking only 5,000 IU of vitamin D daily. I started off slowly and gradually went up to 5,000.
I hope that you feel better soon and thanks for the info about taking to much vitamin D.
.............and who is stopping you from posting, what a shame because you have a lot of good information.
From what you all are saying...it should be much higher, however, the NP at my neuro's office said it was just fine.
On a side not, my Ferritin was 13 and iron saturation was 18%....NP said those were fine too, but what I have read, says they are low....anyone know?