Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Hi Everyone,
Went to my first Physical Therapy session on Tues. Came home so confused and angry and questioning my own sanity and the need to pursue the cause of this illness any further.
The Therapist was a very intelligent man, with a great bedside manner. Very gentle, and cared considerably about his patients and their treatment.
He did an evalutation of my symptoms and physical strenghts and weaknesses and as he did this he asked me what meds they had me on.
I told him none. His eye's got big and he said "What the Hell are they waiting for?. It's so obvious what you have, this is just insane." I couldn't say anything I was so shocked.
I had a bad reaction to him bending my left knee and pushing it to the right side, (Hips started jerking back and forth so badly it scared the heck out of me, this has never happened before), He did the same to my right leg and got very little reaction, then he said, Wow there's alot going on in there.
After watching me try to walk and do some other simple exercises he said, Dear it's obvious to me that you have "MS" and i'm putting that in my report to your Dr. and without a definate diagnosis I really can't help you that much. I said I just wanted him to help me keep my legs strong until I am diagnosed so I can stop being dependant on canes, and walker's and wheelchairs. He told me even with meds and his help, that isn't going to happen. He said it may get better but some days I will need them again.
He said from what I told him of my symptoms and his exam, it was so obvious what I had was MS and I needed treatment. He gave me some simple exercises to do at home but warned me that doing too many at one time or too often will make the symptoms worse.
I left there feeling beaten down for trying to keep myself strong.
I had an apointment with RA specialist Wed and He was a joke. He did exam, more blood work, x-rays of my lower back, pelvis, chest and hips.
After all that and a skin biopsy I won't find anything out for two weeks.
He said, your Neuro hasn't ruled out "MS" has he? and I said no, just trying to prove it I guess. He said that would be his guess and that I don't present to him as having "Lupus" but strong indications of "MS".
So do I react with ANGER, UNDERSTANDING (these things take time),
or just tell them all to go to H... and forget the whole damn thing.
I just feel so depressed and so angry and so omg everything all mixed together that I just want to give it all up and take what I get day to day and deal with it.
Am I wrong to be so angry and confused?
Kath
Went to my first Physical Therapy session on Tues. Came home so confused and angry and questioning my own sanity and the need to pursue the cause of this illness any further.
The Therapist was a very intelligent man, with a great bedside manner. Very gentle, and cared considerably about his patients and their treatment.
He did an evalutation of my symptoms and physical strenghts and weaknesses and as he did this he asked me what meds they had me on.
I told him none. His eye's got big and he said "What the Hell are they waiting for?. It's so obvious what you have, this is just insane." I couldn't say anything I was so shocked.
I had a bad reaction to him bending my left knee and pushing it to the right side, (Hips started jerking back and forth so badly it scared the heck out of me, this has never happened before), He did the same to my right leg and got very little reaction, then he said, Wow there's alot going on in there.
After watching me try to walk and do some other simple exercises he said, Dear it's obvious to me that you have "MS" and i'm putting that in my report to your Dr. and without a definate diagnosis I really can't help you that much. I said I just wanted him to help me keep my legs strong until I am diagnosed so I can stop being dependant on canes, and walker's and wheelchairs. He told me even with meds and his help, that isn't going to happen. He said it may get better but some days I will need them again.
He said from what I told him of my symptoms and his exam, it was so obvious what I had was MS and I needed treatment. He gave me some simple exercises to do at home but warned me that doing too many at one time or too often will make the symptoms worse.
I left there feeling beaten down for trying to keep myself strong.
I had an apointment with RA specialist Wed and He was a joke. He did exam, more blood work, x-rays of my lower back, pelvis, chest and hips.
After all that and a skin biopsy I won't find anything out for two weeks.
He said, your Neuro hasn't ruled out "MS" has he? and I said no, just trying to prove it I guess. He said that would be his guess and that I don't present to him as having "Lupus" but strong indications of "MS".
So do I react with ANGER, UNDERSTANDING (these things take time),
or just tell them all to go to H... and forget the whole damn thing.
I just feel so depressed and so angry and so omg everything all mixed together that I just want to give it all up and take what I get day to day and deal with it.
Am I wrong to be so angry and confused?
Kath
It sounds to me like you have a dx coming from your neuro soon. You are at a pinacle point in the dx process, you can't lose ground now. Hang in there tight, because the dx is probably coming real soon, as long everyone reports what they see to your neurologist, which I'm assuming they will. (See your comment about the PT putting MS in your report to your Dr. I expect your RA will do the same.)
I can only imagine the years you have been working towards this close moment. (I'll be sure to check your profile after this.) If you don't get a dx. soon after seeing your neurologist, then I would be confused and mad. You have 2 reputable health care providers giving their recommendation or dx. to your neuro, and if he doesn't see the trees through the forest, THEN you get angry and confused.
Be sure to get a copy of all medical records, because you may or not need a second opinion, but if you can get them either way, get them. They are interesting to read years later.
I'm sorry you are feeling angry or confused right now, but please, hang in and go forward and get that DX! After being beaten down so much, I'm sure you are tired, but to me it sounds like you need to have the strength to go down this road a little further for the answers to your health you seek. I wish you the best as you go forward, and I hope that you will give us status reports in the future. I'm sorry, but to me this is very exciting, as it sounds like a limbo-lander is finally making positive progress. Please hang in there and have faith that soon you will get the much needed confirmation to your health. Then I know you will start a DMD as soon as you can.
I was like that before i was diagnosed.
It was test for this and that and waiting game.
The waiting is the tough part and will give you more frustration.
But stick with it and if they aint moving as fast as you like, remember your the customer your helping pay the wages and if they aint moving fast enough then give em H...
Good luck, but whatever you do stick with it and get the treatment you need.
Things seem to alway's come all at once and feeling so poorly health wise is not helping the situation.
I have faith that God will see us through this and I just need to pray for alittle more patience with my neuro.
Like Highlandmck says, as long as I have a will, MS won't win.
Thanks again,
Kath