Multiple Sclerosis (MS) Support Group

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Amazonmom 07/20/2014

Gotta say...the pity party is not a great event to be part of. I have an occasional party once in awhile-and I think I'm going to have to host another later this week. I'm going in for my yearly check-up and series of MRI's to check on my progression of MS. I am currently RRMS but due to how I have been feeling and how my body has been acting over this past year.....kinda think it might be stepped up to Secondary Progreesive MS diagnosis. The neurologist wants both brain and spine MRI's this time, normally just brain. To me thats not a good omen. I have fallen a few times over this past year and have had issues of having my legs being so tired, that I bought a rollalator to help me get around after work. I know we all have our own issues that can make our days challenging-but I am dreading the neurologist walking into the room to give me the results of my MRI tests. I try to stay positive-as I know that is so very important. Wish me luck, hopefully it with be a celebration party and not a pity party this visit!

lorrieonline 07/20/2014

Only natural from time to time to feel like we've been victimized by this awful disease. I hope your test results are better than you hoped. I don't let my doctor test as frequently as he would like. For now, I try to focus on doing what I can and staying out of the doctors' offices as much as possible.

BitterootFlyer 07/20/2014

Hang in there.
Pity Parties Pass.
Good Luck!

ChrissyH 07/21/2014

Stay strong

bleedinblue 07/21/2014

I hope the best for you. I advanced to sec prog about 4 yrs ago that's not worst dx you could have you will be fine. Good luck. Chuck

Amazonmom 07/22/2014

Thanks everyone. ..tomorrow is my big day of truth. I will let you all know how the results turn out. I will try to stay positive and hope for the best. I'm still hopeful.

CW2008 07/22/2014

Stay encouraged!

deleted_user 07/22/2014

I think it helps to vent from time to time, especially to those that can relate. I try to not over burden close friends and relatives though. It seems natural for people to gravitate toward those that bring them joy and away from those who don't. If someone asks, I tell them briefly but try to be cautious about it.

AIMLESS 07/23/2014

I VOWED NEVER TO ASK MY MS STATUS. FOR ME, IT ISN'T GOING TO MAKE ANY DIFFERENCE. THEY JUST LOG IT IN MY RECORDS. IN BY BOOK, I THINK I AM ON THE BEST MEDICINE AND DON'T PLAN TO CHANGE. I THINK I'D BE WORSE IF I WASNT' ON IT. (TYSABRI)

GOOD LUCK!

PS. I SERVE FOOD AT MY P-PARTIES, WHICH IS WHY I HAVE GOTTEN A BIT, WELL, CHUBBIE

Amazonmom 07/23/2014

Ok sorry but the Pity Party is CANCELED!!!! I just got the results of my blood work and MRI's....no new lesions! I am stable. Neurologist adjusted Amantadine to take now at noon as well as am, to help give me more energy for the afternoon. The lack of energy and not enough sleep could be major causes in the relapse symtoms-as all tests were stable. The peace of mind is HUGE!! I hate testing. Thanks for the positive vibes you all sent my way-they helped alot. :)

IsJusMe 07/24/2014

~tears~
THANK YOU AMAZONMOM!!!

I SO NEEDED GOOD NEWS CUZ MY PITY PARTY IS ON
THE WAY AND I DONT WANT TO GO THERE!!!!

I AM SO HAPPY FOR YOU!!!!
WOW ... JUST ... WOW!!

~MONSTER HAPPY HUGS!!~
^_^

BitterootFlyer 07/24/2014

Sometimes you have to go.
But you don't have to live there.

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