Hi

Its great when someone recognize that they lack the capacity for something.

Last week I saw mine and he asked if I was doing the home program, I am and in three days off I loose a lot.
I try to do even ten minutes, but almost never a day off.

Ms doesn't rest, why should I.

Alma

so true, Alma! You are right! MS doesn't rest, or give us a break, so, yes! Why should we not keep trying to daily combat what it tosses at us! Good for you, Alma! Keep it up! :)

I had my first visit with a physiotherapist since my first diagnosis. I am on a 'chronic illness' care program which mean i can get 5 free visits. What a total waste of time this was...and to think if I had to pay for it , it would have been 80 dollars for 30 mins. The young woman , was quite pleasant but honestly, to sit there and be told to do a list of exercises that I couldn't do. And then told to improve my balance i should just 'practise' twice a day , closing my eyes and staying upright is ridiculous. My balance won't be FIXED by practise. I agree that exercise is important to keep your muscles working but I cannot get my brain to make my body do the things they want me to do. I felt exhausted from the 30 mins I had with her and it wasn't because I was doing any exercise it was only because in her assessing me she had asked me to do some simple movements and the brain fatigue I felt after was too much. I really don't want to go back .Am I being unreasonable?

XLYNne

Yes, you are. They can't force you but they know what works. That stupid little exercise with the eyes closed, I dismissed also, but after getting used to it.now I do it daily.
She used to make me stand between bars cross my arms on my chest, close my eyes and she would give me light pushes in different directions, we laughed a lot because thats exactly how it feels when walking, like if someone is pushing me. Every day I managed to learn how to use my shock absorbers to avoid falling. She showed me how to do them at home safely. I stand on the hallway touch the walls on both sides, close my eyes and rock side to side. When im very dizzy, I do this and feel better almost immediately.
When I started going I could barely pedal six minutes, I mean slow, im going to cry scream six eternal minutes. Now im pedaling at home one hour, once or twice a day. Now im working on walking for longer than five minutes. Remember Rocky climbing those steps? I got that feeling,,, that desire to conquer,,,,, dr said I wasnt going to.....im still walking.

Dont think you waste your time when you give it to yourself.

Alma

I also did the "stand in the corner" exercise. The P.T. had me stand in a corner, with eyes closed, so that I had walls near me if I began to fall! The corner gave me security, so, I knew I wouldn't do a face plant!
I agree with Alma about how the exercises do "feel" useless, but, I also do know that even tho the exercises are simple, with time the do increase our abilities. I would suggest you get a friend, or family member to help you...tell them it is a "simple child's game, and you are just reverting back to simple fun!"...then have them help you with the things that are difficult!
I am needing help with simple things like "help lift my legs in place, why I tilt them out when in a bent position". I will give us interaction time with the person helping us! The person helping usually likes being the helper. So, choose someone who likes you! he he
I used to help my best friend, (who had ALS) do her exercises...ironically, now I am the one who needs that friend! (She is gone now, but, I do still have some friends who may help me!)
Do your best, keep doing even the small things, and they will help you, I am sure!

Sherizi