My neurologist just officially ruled out MS. I was diagnosed and treated for MS 10 years ago and have been under the care of an MS specialist. She left the area, I had to go to a neuro who specializes in sleep disorders.

I posted about the ordeal here...

http://www.dailystrength.org/c/Multiple_Sclerosis_MS/forum/11203190-i-dont-have-ms

He said my spinal was negative and if I had MS it would be 100% positive. There is no way I could have MS for 10 years and it be negative. IMPOSSIBLE.

HE IS WRONG!!

"A negative" spinal tap does not rule out MS or other diseases. An abnormal autoimmune response in CSF is found in a number of other diseases, so the test is not specific for MS. Conversely, some 5%-10% of people with MS never show these CSF abnormalities. Therefore, analysis of the CSF by itself cannot confirm or rule out a diagnosis of MS. It must be part of the total picture that takes into account other diagnostic procedures such as evoked potentials and magnetic resonance imaging (MRI)."

He is so proud now that he has disproved 6 of my old neuros patients diagnosis. In the last 4 months he has had 6 patient with MS that he proved did not have them. And he is proud of this as she is not really an MS specialist according to him. (She is nationally renowned, but hey, what does the rest of the nation know, he is God after all.)

He said based upon this, he will no longer prescribe me any medication.

So I am now left to deal with excruciating muscle spasms with no relief.

I am losing my Copaxone.

I have muscle spasms, optic neuritis, numbness, tingling, weakness, legs that feel like lead, fatigue, burning sensations, cobweb feeling and many other issues.

I am scared. What happens now when i relapse. I can get no help. I am so scared.

I am going to try to drive to Pittsburgh for help. Anyone know a good MS dr there?

My old MS dr gave me the diagnosis despite the negative spinal tap because of the lesions, symptoms, relapses, evoked response tests. He did not even look at my MRI, EVER.

All he did was read the report and even though every radiologist said the lesions were consistent with MS, that means nothing, half the people in the world have lesions. The increase in lesions over the last 10 years... mean nothing, the evoked response test, nothing, they can be wrong. I had one showing significant decline... when my ON was really bad. One done recently when I was stable and it was normal.

He said no way can I get 2 different results, so one must be wrong and he is choosing the one saying I have ON.

My eye doctor diagnosed me with ON.

I don't know what to do.

I will see another neuro, a specialist this time. But this dr won't even check me for anything else. He is done with me, sending me on my way. If not MS, then would he not want to find out what it is?

I am so angry and scared. What will I do without medications. What do I do when the pain hits? The last time, I wanted to die. I don't want to reach that point.