Multiple Sclerosis (MS) Support Group

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mamak1118 06/13/2011

This is a strange question, and it's probably nothing, but bottom line is I've felt great for about 4 weeks now. I'm on a regimen of meds that seems to be working perfectly for me - I actually went two whole weeks without missing any work due to MS related symptoms. This is the best I've felt in a year. The problem is that I woke up this morning, and I feel "off". Had a hard time getting ready for work, kind of off balance and very sleepy. Having a hard time focusing now that I'm here - I don't know, I just feel unattached or dissociated. I don't have any SOLID symptoms, like dizziness or pain or anything like that. It's just a weird "out of sorts" feeling. Could this be the beginning of a flare? Or should I chalk it up to just a bad day? This sucks, because I was SO enjoying feeling good!

frusciante 06/13/2011

Hmm, I can say I relate to this... When I feel really good for a few days, I tend to do more and I tend to even over exert myself without realizing it...and it's almost like I just have this crash and I am back to low energy and I don't feel like myself, I don't know if that is the extent to what is going on, but that's what happens to me... I don't feel like myself and well, basically feel like crap until I get that wind again... the only thing I can think of is maybe just try taking it easy for a little bit? That may help, just relax into it I hope you will be feeling good again soon... Much love :)

mamak1118 06/13/2011

You mean I shouldn't have scrubbed the floors in my all-tile floor house on Saturday? Done 6 load of laundry on Sunday? I think you might be right. Hadn't even considered it!
Thanks for the reply and the good wishes....
Kristi

frusciante 06/13/2011

LOL yes, I do the same!! then im exhausted for a day or so :) it stinks but im kinda used to the pattern now

AIMLESS 06/13/2011

Wow, "frusciante" hit it right on the head! I think....

We all chomp at the bit do our normal stuff... or some part of our normal stuff, and when we do, we may pay.

I have less and less energy and strenght to do those things, so when I feel good, man I over do.

I hope you are able to balance both sides and I pray that you will soon.

LvAmy

mamak1118 06/13/2011

Thanks, Amy! As the day goes on, the pain is getting worse. I'm mad at myself, but my house looks SOOO good!! :)

deleted_user 06/13/2011

I know exactly what you mean. That energy is soooo nice. I just want to do everything - to move contantly (have fun, get errands, done, etc) It always ends up making me crash to some extent. Usually I'll feel "off" like you mention before my symptoms flare up like crazy.

I don't know if doing less when I have the energy would make it last longer or not - So far I've only overdone it to some extent. I just end up like a kid in a candy store - Its so nice to feel alive again.

deleted_user 06/13/2011

Def. sounds like you overdid things! Take it easy, as much as you can, anyway LOL I am also guilty of doing too much on my "good" days, and pay for it for a few days after.
When will I learn???
Take care :)

deleted_user 06/14/2011

Hi there, I am new to this site. I can relate to this. I am going through an exhausting stage but whenever I do have a bit of energy I over do things because it feels so good to do stuff and then I crash out too. I got diagnosed in January this year but have had this condition for a number of years now . I should have learned to pace myself better but it feels so good even to do some cleaning around the house. On the positive side, because I am resting alot right now I have had more time for the stuff that really matters - Ive had more time to reach for the phone and speak to others. While my hands are ok at the moment I am doing more crosstitch which I have been enjoying. Just enjoying the simple things in life really.
Love to you all : )

mamak1118 06/14/2011

I know you are all right about this. I definitely overdid it and am paying dearly. I hope I get back to "normal" soon because I'm planning a trip in two weeks and will be driving 5-6 hours! Am I crazy to even try?
Coolbreeze - I hope you find this site as helpful as I have. I was only diagnosed last August, but like you, have had the disease for many years prior. It's so helpful to know that there are people out there who REALLY understand what you're feeling. Doctors can diagnose, but unless they have MS, they really don't know what it's like. Take advantage of this site. Good luck and much love to you!
Kristi

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