Multiple Sclerosis (MS) Support Group

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Brain & Nervous System
/ Multiple Sclerosis (MS) Support Group

Not sure what to do the MS Drugs

xaviermom74
xaviermom74
Hello to everyone, I know we all go thru the same things different from day to day, I have been officially diagnosed with MS 4 years ago symptoms began 10 years ago. Started Rebif briefly 2 years ago only took for 2 months could not take the side effects, since then have not been on anything. I take adderall for fatigue other than that really no issues that have prevented me from functioning. However as of late had some weird symptoms with numb foot, burning tongue and mouth and issues with focusing(eye), though I am somewhat back to normal though fatigue a little worse, no mri in 2 years as I now have to pay the 10% and with my other health issues type 1 diabetes, frozen shoulder at moment, I am kind of spent out. Anway I am thinking I need to take some kind of drug not sure what to do, I do know I dont want to feel any worse and I have no interest in my hair breaking off coming out etc, a side effect of the Rebif I assume. Any thoughts would be helpful. Thanks for reading my ramble.
CW2008
CW2008
I'm on copaxone and did had some of the minor side effects they talk about but over time the side effects have greatly decreased. I still get the sting with the enjection and a lump at the injection site but it goes away after a couple of days. At one point I was getting large whelps and swelling at the area but that was still minor compared to some of the symptoms I have heard about with some of the other treatments. Good luck.
deleted_user
deleted_user
I use MS diet, 33+ supplements a day, and cannabis. Don't rule out natural medicine! You don't have to take CRABS or deal with side effects/shots. I was on synthetic meds and never stopped rapidly progressing.
Now I've been on natural medicine for 2 years and I don't even use my cane anymore! I have one new lesion and all the old ones are faded nearly away. I would never have got these results on any MS drug--my neuro swore I wouldn't walk anymore and maybe she would be right if I took her crappy meds.