Multiple Sclerosis (MS) Support Group

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ricanfemale30 07/02/2012

Does anyone else find it a daily struggle with food/liquids?..i lost my apetite and my thirst..i eat and drink water to take my medicine and sometimes thats it during the day..yes yes i know hydrate hydrate i know the deal but when ya just cant muster up the urge to drink a glass of water cuz ur lips are so damn cracked up from dehydration. its not just the lack of apetite its the nausea n distaste for the food/liquid as well.. i cant suck down a gallon of water n eat 3 square meals a day cuz dammit its unrealistic..i try man but this is ridiculous. i dont remember eating/drinkin much today at all..i could use an IV of fluids.. wat imNOT in the mood for is people at the ER telling me i need to eat n drink water. no shit. no freakin shit. if i could i wouldnt be here in the emergency room now would i??!!!??! "but ur a nurse u should know" ONCE AGAIN!!! just cuz u KNOW doesnt mean that ur able..

deleted_user 07/02/2012

I totally understand, I have day's I'm nausea's and hardly eat. Easy for ppl to give advice let them exp it. Hope your feeling better.

almairis 07/02/2012

Hi Jackie good to see you again

I have it since my last flare a year ago. My lession is in the spinal cord and Dr said is part of what affect me. At the beginning all I ate was yogurt and boost, because the sensation of fullness. My psycologist and I worked on that. I have to write notes to remind me and set hours on alarm, eat without the hunger, Remember is for nourishment.
Now I recognise I haven't eaten because I get shaky and weaker.
Only a few times I feel ravenous, weird,,,its like someone flip the hunger switch, then I'm hungry even if I eat. Then I'm back to no feeling again. Same with liquids, but thats easier because I feel my mouth dry.
Sorry you have this, but plan and follow.

Alma

deleted_user 07/04/2012

I can sure relate to this! :) I have days I don't eat or drink other then to take some meds or supplements. I get lectured about it alot but I have no appetite and I feel sick.

mjideas 07/06/2012

I can relate as well..not just when I'm like I am right now. Drank Boost - Chocolate. Taste not half bad. Cracked lips I use Carmex or Blistex. Did you ever try the Megace (megestrol) I suggested?

I have even worse appetite in hot weather.

Hope you find a solution soon

Melanie

pinkfranz 07/07/2012

I can relate to what you are feeling. There are times I see food and I cannot put it my mouth.

deleted_user 08/05/2012

I had lost alot of waight over the year and did not know what was wrong.Long story short for about a month I did vitamens and store brand of ensure.My appetite has gradually come bk, but for awhilw foods had either no tast or tasted weird.Only things I could taste were dill pickles and butter mik and tuna fishNow I still have some days that I taste salad dressing, but not salad,taste steak sause,but not steak and taste honey, but not bread!!!!!!

deleted_user 08/05/2012

i listen to my mom nag me about eating and i look at her like, don't you see me trying not to gag on this blueberry?

some days it's really hard. i never manage to eat three meals a day. i started drinking boost once a day b/c it has tons of vitamins we need and probiotics that might help w/ your digestion. they have a formula w/ 360 cals that might help....

it's maybe a 12oz bottle; sometimes i have to sip it slowly over a half hour, but it makes me feel better. (btw it's gluten free)

hope this helps and try to hang in there!

ezone 08/05/2012

Wow, I am so sorry that you have no appetite. I have NEVER had that problem. I have to fight my weight all my life. But giving up sugar now is really helping me. But no, I do not have that problem.

What about eating just fruit or something like that? My father was really sick with cancer treatment and he could eat fruit. Something healthy--anything healthy. My thoughts are with you.

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