I suffer from nerve pain too. There is a pain sub-group here at Daily Strength you might try going to. Go to Groups at the upper right hand side of the screen and click it. You will see the group called, MS People Dealing with MS Pain. There might be some messages there about dealing with nerve pain.

My nerve pain is in my legs from thighs down to my feet. I take Lyrica for my nerve pain. It works for me well. I tried stopping it once and realized how bad my pain was, so I started it back up again. This was not a medication I could drop. I also go to a pain management clinic where Lyrica was prescribed, along with some pain medication, Opana ER. The combination works well together for me and keeps my pain level at a managed level.

Even though you don't have a dxd, it doesn't prevent you from managing the symptoms. Pain comes to all of us, suffering is optional. Try seeing a pain management specialist to help you deal with this nerve pain.

I used to use gaba but it made me insane after a while and also not that great for pain relief. I was taking 900mg a day--so about what you're taking. Also used things like opiates, infusions, shots, etc

Nothing works for nerve pain without tons of side effects imo so don't underestimate all the little natural things you can do! but you've got to be strict.

Supplements like alpha lipoic acid, especially when combined with L-carnitine, are very effective at reducing overall pain. Concentrate on anti-inflammatory and/or MS diet--diet has made a HUGE difference in the amount of pain I have daily
Consider a natural pain reliever/muscle relaxer/anti-inflammatory like Cannabis. yes, I know what people say but screw them they don't know how bad chronic nerve pain is!
Changing your lifestyle is necessary as well--knowing how much you have to "spend" before youre spent. Delegate tasks, reduce stress in every way you possibly can (even if it means not doing things you used to for self/others)

I could go on with all the specific research, diet tips, etc but that would take forever LOL Ask if you want to know more! Or read Epagain's posts! she kicks ass at helping her husband naturally but also recommends a few other things you might find interesting

take care!

I know I have already posted some of the negative side effects of excess sugar.

One that is well known is that sugar contributes to neuropathy, this is especially seen in diabetic neuropathy.

So if you stick to some complex carbs (brown rice,etc) that can be converted to sugar SLOWLY and try to eat less sugar this MAY reduce (not eliminate) some of your nerve pain.

Best wishes to you,
EP

oh yes!! sugar-noooo- lol- its very bad 4 you!!-i take lyrica-to- and once was on neurotin- i use 2 call it the rotten pill!!-humor never hurts!!
and baclofin- 4 muscles- big hugs!! hope u better!!

My hubby does not have pain (whole heck of a lot of numbness). However, recently someone out here told me about their significant other who does have nerve pain. Acupuncture helped make them feel "80 percent" better.

I am not going into who told this to me as they did not say I could mention their name. However, the point is that this may be a potential option to help relieve the nerve pain.

I hope you can find something that helps you,
EP

Hi Irish. I have a lot of nerve pain. Mostly caused by herniated discs in my back. Neurontin did not help me and I was on a higher dose, Lyrica was somewhat helpful but had side effects (my face and hands swelled)

THEN I found the miracle pill for me - Amytriptiline 25 mg. Came off Lyrica and pain almost gone. Took 4-5 years to find it. I also use Lidocaine patches. I have had a couple of doctors recommend alpha lipoic acid and L-carnatine for overall MS treatment. I use Tiger balm and icy hot too and a tens unit.

You also may want to see a pain management dr or wholstic doctor as nerve pain can be very difficult to treat, I have had acupuncture off and on for many years got temporary relied with it for nerve pain.

I've spent the last 14 years living daily with ice.

Good luck,

Melanie