Yup, my feet feel like I'm walking on gravel and my stupid legs knot up at night then hurt during the day where were knotted up! It's been about 2 years for me too. Sometimes my rearend mucles get sore, I think from walking off balance.

You sound just like me - I'm even to the point that I avoid walking any further than I need to because my feet burn when I do and my legs gets to hurting so bad that I'm forced to limp and then finally stop. It actually hurst a bit more right after I stop - like a swelling of the pain.

This is what has made me feel truly disabled - I don't plan anything that will require extended walking - no shopping, being outdoors, museums, etc.. The idea of hte MS Walk actually made me laugh because the idea of being able to do it was so absurd anymore.

And as far as meds goes, I haven't found the trick yet. Tried Cymbalta for neuropathy (gained weight), Zanaflex for spactisity (made me sleepy), pain killers (can't function/drive, etc.) - none of it works.

I'm crossing my fingers (my toes are too numb to cross anymore) that the Phase 3 trials for the new meds work out and we get some relief soon.

Enough is truly enough.

thanks for your reply. This is really hard to live with, being in pain all the time and the FATIGUE!!

Provigil works great for fatigue I find. Keeps me awake and energized without being jittery.

Oh yes, I have it everyday. Sometimes the legs will not work. They are two stiff sticks trying to bend. I wish I could walk because I have gained so much weight by not exercising. My calves really get sore if I walk too much, which is not far. I walk with a cane. Do you have a cane, sometimes that helps. I know how you are feeling, it is terrible, I wish we did not have this pain. HUGS Maggie,

My legs just recently started to hurt big time but I think it may be due to severe weather changes here because before it was mild pain but now they just ache all the time...i took an aspirin and that helped but still that is a temporary fix.

I think leg problems are common in MS. I get cramps under my foot when I walk and in my toes. My calves hurt and down the sides of my thighs I get burning pain. Sometime the burning is so bad I cry and nothing I have pain killer wise helps. When the pain is not bad it still hurts but i live with it, the feeling is weird kind of itchy but yet not itchy, more like irritation down the outer thigh. I also get spams at the top of my left leg which makes the entire leg spasm. When I do not have my husband to hold on to I now use my cane to help me with balance and clumsiness and in case I fall so I can get up.

Uggghhhh yes! My feet feel like they are covered in fire ants. My legs are in pain so much and they just give out without warning. I too agree that leg and foot pain is common among MS'rs. Your def not alone!

I remember when my leg pain used to be extremely bad, I got stuck using a walker for almost 2 months starting last March because of it. It was so embarrasing at school because I'm only 17 and couldnt even get up the stairs to two of my classes for that time so I had to just sit in the library with people staring at me. It eventually got better and I'm walking on my own again but the pain comes and goes and there still is slight numbness running up my legs since. Hopefully yours will get better too and you wont need too much assistance when walking. Try physical therapy or swimming, I found those helped me out quicker than by just taking certain medications. Good luck!!
-Lindsay

yes my legs hurt really bad. I wish you well and know that you are not alone. Have you spoke to your neuro there is meds out there that can help. I found a combo of meds that are helping me.
many hugs
Morgaine

Right now, well for about 2 weeks, my feet feel like they are buried in sand, a gritty kind of feeling. They also feel swollen at times. My left calf is stiff-ish, kind of like a charlie horse. I know in the past taking magnesium has helped with the cramping feeling, so try to take that.

I need to get back on my vitamins. I noticed a big difference when I stopped taking them...

This is one description of my leg pain.

Burning cold - like a bunch of miniature ninjas are running around inside my legs slicing up my veins and muscles with swords of ice.

I haven't really found relief. Sometimes the Sativex dulls it a little, other times the ninjas are napping and the pain lessens or I'm just numb and other times I cry.

I get burning, tingling and numbness in my legs (and rest of body...) at times. Then some days I find I have completely unexplained pain/fatigue, despite not having done anything else differently. I suspect these times are related to the weather / heat. I'm not yet dx, but don't plan to take any medication (it's not common in NZ anyway). Instead I aim to continue with my walking and horseriding as best I can on any given day.

Morning (or evening) everyone, its SUNNY IN GLOUCESTERSHIRE and really mild today.

Anyway I am not dx yet but OMG yes leg pain and foot pain I can relate to that.

My GP asked me how it hurt so I said OK take a sock and soak it and then put it in the freezer for a few hours. Fill it with gravel and glass and then put it on your feet. SHE SQUIRMED AND SAID TO ME your joking its THAT BAD. Yes ITS THAT BAD.

Sometimes it reminds me of walking through a really cold slushy field with A HOLE IN THE WELLIE LOL.

I get the burning in my right leg it feels like i am on fire sometimes. I try and trick my brain by putting a really cold flannel on my leg WHICH DOES WORK for a few minutes relief.

I get the griping in the tops of my legs like someone is pinching my thighs really hard, then it just goes.

Nueropathy is soooooooo weird.

Usually I cant walk very far as my legs feel like they are cast in CONCRETE, but yesterday just for 10 minutes all of a sudden I COULD WALK NORMAL it was BLISS. Then it went back to normal that is pain etc.

Yes I can relate it is worse at night when I am hot.

If you have the same problems as me in bed, my doctor has given me a BED CAGE its BRILLIANT, it takes the heat and the weight off the legs AND I CAN SLEEP BETTER its BLISS.

I feel for anyone who suffers this.

I told my sister it isnt PAIN as such its SENSORY PAIN which is just relentless, but thank god it comes and goes.

The FIZZING AND VIBRATIONS DRIVE ME MAD SOMEDAYS.

Anyone got any ideas how to cope with that?

Isnt it funny though how you get used to it? I dont take any medication as i found nothing worked anyway.

HAVE A LOVELY DAY all of you.xx

Oh yes, I can relate to the leg pain. I have been having it since I was diagnosed 15 yrs. ago, but lately it has been getting worse. Some days it is worse than others. Last night was the worst. Steps really give me problems and cause the leg pain to be worse. MS sure isn't much fun. I try to keep positive, but it is so hard. I recently retired on disability from my job because walking with this much pain was a bad situation as I worked in a prison.