Multiple Sclerosis (MS) Support Group
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Thought I would update on what I remember of what happened. I had been having having asthma since Friday afternoon & on Saturday it got a lot worse. I was trembling & had no control of body basically. Kept using nebuliser & ventolin imbetween.
When we had decided to have soup before tea (we eat in front of tv with stable tables) David gave me mine & I kept blanking out & not responding to him. Was wearing half the soup as with th trembles lost control. He kept yelling at me as I wasnt getting the soup to my mouth & took it from me & told me to go to bed since I couldnt stay awake/with it.
This was only 7pm. I got my walker in front of me with the tray on it & that has all my bits like hearing aids, glasses etc & got about 6 steps & just lost strength totally, knocked everything flying & me on the floor.
David had to help me get up & walk me to bed & put me in bed.
I was still coughing & wheezing so he got me to use ventolin.
I don't remember much till about 10pm David told me to get up & use nebuliser. I used it & still could barely talk, breathe & wasn't with it at all.
David pressed my button to the alarm company & told them what was happening & they called an ambulance. That arrived in about 10-15mins which seemed quick as I was not aware. I used their oxygygen & still no better so taken to hospital.
This time went to casey (local) hospital which was good. I was taken in to a cubicle & worked on me immediately. David said they had me on one one of those 100% oxygen, lots of tests etc again. Had a chest x-ray & this time it was very cloudy with pneumonia so that was compared with a clear one 2 weeks ago. Shows how quick it can hit. I was on drips, tablets oxygen etc.
The scary part is I didn't even know what was happening or that I was so bad & very close to be being put in a coma.
Poor hubby was obviously scared about it all. I know each time I asked for water he would lift my head & give me a sip at a time as that is all I could take without coughing bad which was continuous.
David eventually went home about 3am for some sleep & I think I was already in a private room by then. I have to be in a private room as I have a vre bug that means that all staff/Drs/nurses etc put the plastic gowns & gloves every time they come in. It is a hospital aquired bug.
Of course the ms symptoms kicked in with weak legs, arms, still had trembles a lot.
I was on the nasal oxygen when I was in the room & they gradually reduced it, that was as well as the ventolin regular & lots of pain tablets & additional ones.
I gradually was able to do more each day & as soon as I was on oral medications they said I could go home as I could walk with walker & do basics. Safer to go home as there are so many virus/infections in the hospital etc that it could be a danger to me. Also I am booked in at 7.30 for a 8.30 mri at monash so easier to do it as an outpatient.
Anyway, came home late yesterday. Still very croaky, coughing a lot & weak really. It will take time to get over the pneumnia & everything else.
As a different note I have got another appointment with my foot specialist for trying to go to cat 1 which is is what one of the other other Dr's wrote & requested. It is next Thursday morning.
Sorry for long post but it try to explain whats going on.
When we had decided to have soup before tea (we eat in front of tv with stable tables) David gave me mine & I kept blanking out & not responding to him. Was wearing half the soup as with th trembles lost control. He kept yelling at me as I wasnt getting the soup to my mouth & took it from me & told me to go to bed since I couldnt stay awake/with it.
This was only 7pm. I got my walker in front of me with the tray on it & that has all my bits like hearing aids, glasses etc & got about 6 steps & just lost strength totally, knocked everything flying & me on the floor.
David had to help me get up & walk me to bed & put me in bed.
I was still coughing & wheezing so he got me to use ventolin.
I don't remember much till about 10pm David told me to get up & use nebuliser. I used it & still could barely talk, breathe & wasn't with it at all.
David pressed my button to the alarm company & told them what was happening & they called an ambulance. That arrived in about 10-15mins which seemed quick as I was not aware. I used their oxygygen & still no better so taken to hospital.
This time went to casey (local) hospital which was good. I was taken in to a cubicle & worked on me immediately. David said they had me on one one of those 100% oxygen, lots of tests etc again. Had a chest x-ray & this time it was very cloudy with pneumonia so that was compared with a clear one 2 weeks ago. Shows how quick it can hit. I was on drips, tablets oxygen etc.
The scary part is I didn't even know what was happening or that I was so bad & very close to be being put in a coma.
Poor hubby was obviously scared about it all. I know each time I asked for water he would lift my head & give me a sip at a time as that is all I could take without coughing bad which was continuous.
David eventually went home about 3am for some sleep & I think I was already in a private room by then. I have to be in a private room as I have a vre bug that means that all staff/Drs/nurses etc put the plastic gowns & gloves every time they come in. It is a hospital aquired bug.
Of course the ms symptoms kicked in with weak legs, arms, still had trembles a lot.
I was on the nasal oxygen when I was in the room & they gradually reduced it, that was as well as the ventolin regular & lots of pain tablets & additional ones.
I gradually was able to do more each day & as soon as I was on oral medications they said I could go home as I could walk with walker & do basics. Safer to go home as there are so many virus/infections in the hospital etc that it could be a danger to me. Also I am booked in at 7.30 for a 8.30 mri at monash so easier to do it as an outpatient.
Anyway, came home late yesterday. Still very croaky, coughing a lot & weak really. It will take time to get over the pneumnia & everything else.
As a different note I have got another appointment with my foot specialist for trying to go to cat 1 which is is what one of the other other Dr's wrote & requested. It is next Thursday morning.
Sorry for long post but it try to explain whats going on.
Neener
I'm so sorry you have to go through all of this. I'm especially glad to hear you finally got your appt. with a dermatologist to look at your nose. I too suffered from Melanoma, and can understand your anxieties about it. Your foot recovery sounds overwhelming, but as long as you have your lap top you can continue to "get out" by logging on to DS! I will be thinking of you, and sending positive vibes your way for pain free days. xoxo
Today I saw a speech therapist (?) & she assessed my speech & volume, control etc. Apparently my volume is about 3-4 & another test I was about 5 & the average is about 9-10. There is a function on the ipad that you can download for free & measure it which we have downloaded.
My lungs aren't getting enough air which is why voice is affected. Going to see her weekly for this month. It is at the local health centre so not too expensive which is good.
Will work on it all each day as seeing her again on Thursday.
She wants to help me get it better before surgery as the anaesthetic will affect it too.
Never a boring moment LOL. At least I cwn use the wheelchair when outside. We have to put one of our lounge chairs in the shed so that I can use the wheel chair inside if I have too as there just isnt room in our lounge. That will mean wewill only have 3 chairs in the lounge but I could be in the w/chair or we could bring a kitchen chair in if we get visitors which is unusual anyway.
Will keep you updated as I learn more.
Good luck working with the ST, I hope that helps. Don't over do it though!