Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
AusSue
Thought I would update on what I remember of what happened. I had been having having asthma since Friday afternoon & on Saturday it got a lot worse. I was trembling & had no control of body basically. Kept using nebuliser & ventolin imbetween.
When we had decided to have soup before tea (we eat in front of tv with stable tables) David gave me mine & I kept blanking out & not responding to him. Was wearing half the soup as with th trembles lost control. He kept yelling at me as I wasnt getting the soup to my mouth & took it from me & told me to go to bed since I couldnt stay awake/with it.
This was only 7pm. I got my walker in front of me with the tray on it & that has all my bits like hearing aids, glasses etc & got about 6 steps & just lost strength totally, knocked everything flying & me on the floor.
David had to help me get up & walk me to bed & put me in bed.
I was still coughing & wheezing so he got me to use ventolin.
I don't remember much till about 10pm David told me to get up & use nebuliser. I used it & still could barely talk, breathe & wasn't with it at all.
David pressed my button to the alarm company & told them what was happening & they called an ambulance. That arrived in about 10-15mins which seemed quick as I was not aware. I used their oxygygen & still no better so taken to hospital.
This time went to casey (local) hospital which was good. I was taken in to a cubicle & worked on me immediately. David said they had me on one one of those 100% oxygen, lots of tests etc again. Had a chest x-ray & this time it was very cloudy with pneumonia so that was compared with a clear one 2 weeks ago. Shows how quick it can hit. I was on drips, tablets oxygen etc.
The scary part is I didn't even know what was happening or that I was so bad & very close to be being put in a coma.
Poor hubby was obviously scared about it all. I know each time I asked for water he would lift my head & give me a sip at a time as that is all I could take without coughing bad which was continuous.
David eventually went home about 3am for some sleep & I think I was already in a private room by then. I have to be in a private room as I have a vre bug that means that all staff/Drs/nurses etc put the plastic gowns & gloves every time they come in. It is a hospital aquired bug.
Of course the ms symptoms kicked in with weak legs, arms, still had trembles a lot.
I was on the nasal oxygen when I was in the room & they gradually reduced it, that was as well as the ventolin regular & lots of pain tablets & additional ones.
I gradually was able to do more each day & as soon as I was on oral medications they said I could go home as I could walk with walker & do basics. Safer to go home as there are so many virus/infections in the hospital etc that it could be a danger to me. Also I am booked in at 7.30 for a 8.30 mri at monash so easier to do it as an outpatient.
Anyway, came home late yesterday. Still very croaky, coughing a lot & weak really. It will take time to get over the pneumnia & everything else.
As a different note I have got another appointment with my foot specialist for trying to go to cat 1 which is is what one of the other other Dr's wrote & requested. It is next Thursday morning.
Sorry for long post but it try to explain whats going on.
When we had decided to have soup before tea (we eat in front of tv with stable tables) David gave me mine & I kept blanking out & not responding to him. Was wearing half the soup as with th trembles lost control. He kept yelling at me as I wasnt getting the soup to my mouth & took it from me & told me to go to bed since I couldnt stay awake/with it.
This was only 7pm. I got my walker in front of me with the tray on it & that has all my bits like hearing aids, glasses etc & got about 6 steps & just lost strength totally, knocked everything flying & me on the floor.
David had to help me get up & walk me to bed & put me in bed.
I was still coughing & wheezing so he got me to use ventolin.
I don't remember much till about 10pm David told me to get up & use nebuliser. I used it & still could barely talk, breathe & wasn't with it at all.
David pressed my button to the alarm company & told them what was happening & they called an ambulance. That arrived in about 10-15mins which seemed quick as I was not aware. I used their oxygygen & still no better so taken to hospital.
This time went to casey (local) hospital which was good. I was taken in to a cubicle & worked on me immediately. David said they had me on one one of those 100% oxygen, lots of tests etc again. Had a chest x-ray & this time it was very cloudy with pneumonia so that was compared with a clear one 2 weeks ago. Shows how quick it can hit. I was on drips, tablets oxygen etc.
The scary part is I didn't even know what was happening or that I was so bad & very close to be being put in a coma.
Poor hubby was obviously scared about it all. I know each time I asked for water he would lift my head & give me a sip at a time as that is all I could take without coughing bad which was continuous.
David eventually went home about 3am for some sleep & I think I was already in a private room by then. I have to be in a private room as I have a vre bug that means that all staff/Drs/nurses etc put the plastic gowns & gloves every time they come in. It is a hospital aquired bug.
Of course the ms symptoms kicked in with weak legs, arms, still had trembles a lot.
I was on the nasal oxygen when I was in the room & they gradually reduced it, that was as well as the ventolin regular & lots of pain tablets & additional ones.
I gradually was able to do more each day & as soon as I was on oral medications they said I could go home as I could walk with walker & do basics. Safer to go home as there are so many virus/infections in the hospital etc that it could be a danger to me. Also I am booked in at 7.30 for a 8.30 mri at monash so easier to do it as an outpatient.
Anyway, came home late yesterday. Still very croaky, coughing a lot & weak really. It will take time to get over the pneumnia & everything else.
As a different note I have got another appointment with my foot specialist for trying to go to cat 1 which is is what one of the other other Dr's wrote & requested. It is next Thursday morning.
Sorry for long post but it try to explain whats going on.
In the meanwhile, here's a link to the Pneumonia Support Group here on DailyStrength. You might find some support, and/or useful/interesting information, there in regard to recovery:
http://www.dailystrength.org/c/Pneumonia/support-group
Also, here are some responses on Sharecare.com's Health Reference QA site:
What is pneumonia?
http://www.sharecare.com/question/what-is-pneumonia
What causes pneumonia?
http://www.sharecare.com/question/what-causes-pneumonia
How long does it take to recover from pneumonia?
http://www.sharecare.com/question/how-long-take-recover-pneumonia
Again, glad you're home and feeling a bit better, and able to check in with us here :-)
Amy
many hugs, connie
Glad to hear you are better. That was a scary event. Please don't wait so long next time.
Hope all appointments go well, and take care, you don't want them to postpone foot surgery.
Alma
Cathy
I am finding that I am also sweating heaps, had to change nightie during the night last night & gone through couple shirts & varying from hot sweats to cold shivers so just keeping warm & taking all my medications etc
Its going to take me a while to get better for sure so going to take it easy for I can.
I hope Monash look after you adn you are ok commuting there and back also and you don't have to wait long.
So sorry to read your M.S symptoms flared up through this, low immunity and being so unwell. Sending hugs from Sydney xo
Hope the asthma is gone. Are you on any new medication that could be causing that? My older daughter has asthma and she can't have some of the meds for it. She gets chills, sweating, fast heartbeats and nasty moods. At least now she knows which ones make her sick, thank God.
Hope all goes away soon,
Alma
Prayers are with you for healing and peacefulness in your life.
I am doing the rounds of local hospitals with appointments, on Thursday I see the the foot specialist at 8.45 (hopefully) at Moorabbin campus then 12pm at Monash - Clayton (about 15-20 minutes away). That's neurologist.
Then next Wednesday I have finally got an appt with Dandenong hospital plastic surgery (about 20-30mins in different direction) to get possible basal cell carcenoma on nose checked out. It took over a month to get the appointment & only because I kept phoning LOL. Squeaky wheel etc.
One thing I wont get bored with different Dr's just confused.
He has never met the foot specialist & he will be able to tell him how bad I am too & how much he has to help me too. Hopefully that will help to get the operation sped up more as I can barely walk now.
He knows the Neurologist & again will be able to say how bad I have been too.
Will keep you posted.
Then we went to different hospital & saw neurologist & mri shows no changes so that is real good.
Glad its all moving ahead now finally.