Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I just wanted to introduce myself real quick. I actually had typed a very long first post and then because my left hand is half numb right now I hit something and lost the whole thing!
Anyway, not feeling up to retyping that whole thing so I'll just say my name is Michelle, I'm 40 years old and I was just diagnosed with MS about 2 weeks ago. I've been in a flare since April 28th which is what prompted me to go to the doctor in the first place. Let's just say I've not been having a very good time lately. BUT the past 2 days I've seen a slight lessening of symptoms (left side numbness and horrible fatigue) and am hopeful that this flare is moving out.
I'm still in the process of getting on a medciation. My neuro really wants me on Betaseron but Anthem won't pay for it because it's a step therapy drug and they wanted me to try Avonex or Rebif first. I told my neuro that and now he's got his office calling the Betaseron assistance people to see if they can get me help in paying for it.
I've been posting at another board for a couple weeks but they are VERY heavily moderated and not very busy. I'm hoping I can join you ladies and gentlemen and get some much needed info and support. Thank you :)
Anyway, not feeling up to retyping that whole thing so I'll just say my name is Michelle, I'm 40 years old and I was just diagnosed with MS about 2 weeks ago. I've been in a flare since April 28th which is what prompted me to go to the doctor in the first place. Let's just say I've not been having a very good time lately. BUT the past 2 days I've seen a slight lessening of symptoms (left side numbness and horrible fatigue) and am hopeful that this flare is moving out.
I'm still in the process of getting on a medciation. My neuro really wants me on Betaseron but Anthem won't pay for it because it's a step therapy drug and they wanted me to try Avonex or Rebif first. I told my neuro that and now he's got his office calling the Betaseron assistance people to see if they can get me help in paying for it.
I've been posting at another board for a couple weeks but they are VERY heavily moderated and not very busy. I'm hoping I can join you ladies and gentlemen and get some much needed info and support. Thank you :)
can.
Hope you manage to find the best treatment plan which works for you.
Myself, I have managed to remain in remission for over ten years.
I use a plan with very carefull diet, (Swank, he wrote a book), plenty of supplements, as well as a carefull plan of regular exercise. I time my self using my IPOD & try to do 20 minutes most days if not at least every. Have lerned over time that the more that I exercise the better I feel.
The only drug that I am on for MS, is something called low dose naltrexone, online check ldninfo.org. Not a steroid & when used in a liquid method, very inexpensive. No needles!
Have you read about CCSVI yet? I've been tested (four of five veins blocked).
you've found a great site.