Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
frusciante
I went to the ER yesterday because I was getting very dizzy and nauseous. This happened a couple months earlier but went away within a week.
Well...now it's decided to happen again, except now it's accompanied by almost like a paralysis???
I would try to walk and my legs wouldn't move! It was scary, I was basically shuffling around after my son! Every time I turned around I almost fell. I had and still have double vision...anyway...
They did an MRI on my brain and told me something about the white matter in my brain was dissolving or not interconnecting. They said it's usually the beginning signs of MS. I am going to be going to a neurologist for further testing to see if I do indeed have it.
At that the moment, I can feel a burning, stinging feeling up and down my spine and stiffness in my neck, not that dizzy.
I should also mention that Yoga helps out a lot, although walking doesn't help AT ALL, as I always feel I may fall.
I guess my point it, I was wondering if anyone could give me some type of input as to how this works. Why does it happen. is it hereditary? A little lost and very concerned. Thank you :)
Well...now it's decided to happen again, except now it's accompanied by almost like a paralysis???
I would try to walk and my legs wouldn't move! It was scary, I was basically shuffling around after my son! Every time I turned around I almost fell. I had and still have double vision...anyway...
They did an MRI on my brain and told me something about the white matter in my brain was dissolving or not interconnecting. They said it's usually the beginning signs of MS. I am going to be going to a neurologist for further testing to see if I do indeed have it.
At that the moment, I can feel a burning, stinging feeling up and down my spine and stiffness in my neck, not that dizzy.
I should also mention that Yoga helps out a lot, although walking doesn't help AT ALL, as I always feel I may fall.
I guess my point it, I was wondering if anyone could give me some type of input as to how this works. Why does it happen. is it hereditary? A little lost and very concerned. Thank you :)
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It is speculated that the mono virus or strep throat is the environmental trigger because the herpers virus(HHV-6) has a chemical make up similar to a persons own myelin. The immune system attacks the HHV-6 virus and confuses the mylen with it and starts attacking the myelin incorrectly.
Its a very common virus and most people have encountered in in childhood.
It is more common the farther a person is lives from the lattitude, more common in northermn regions, mor common in people of Northern European Descent although African Americans tend to have a more aggressive course when they get it.
It is 3x as likely in woman than men, probably because of a woman's hormone cycle and how it has to fluctuate to be able to carry a fetus successfully, weaken while carrying the fetus and then return to normal after child birth...I'm not saying pregnancy causes MS, I'm saying the womans hormone cycle designed to be able to carry a child may be one of the reasons woman get MS more often then men...but same thing, when men get it they often have a more agresive course of MS, then woman...
But the severity of the course cannot be predict either? Some men and African Americans will have a mild course and some woman will have a more severe course.. Its not predictable and its not known why a person has an aggressive or mild MS course? A lot about MS is not known and not predictable---but there is treatment for it, not to cure it but to slow it down. So the meds end up being maintenance medication.
On this site it list the odds of getting MS by family involvement....
Your chances of developing MS are:
* 1 in 1000 if you have no relatives with MS
* 1 in 100 if you have a second-degree relative (grandparent, aunt, uncle, etc.) with MS
* 1 in 40 if you have a parent or sibling with MS
* 1 in 4 if your identical twin has MS
http://ms.about.com/od/multiplesclerosis101/p/ms_causes.htm
Sometimes it takes a while to be diagnosed, as I think all auto immune,chronic disease do, especially if the nervous system---so prepare for a long haul with plenty of patience.
Two sites I really like for reading about MS.....
http://www.mult-sclerosis.org/howms.html
and
http://www.thjuland.net/0site.html
good luck & i"m looking forward to seeing you around as you go through the often confusing testing for MS--we''ll be there as a source of reliable information. Its best to have no chronic illness but if your gonna get one, MS is not a bad one to have. :)
One thing is with MS everyone is so different. If you do have ms we are all here for you and we all with help you work through all of this ms bologna. NNY11 gave you a ton of info..
Good luck.. and remember if you have this..you can talk to us we all know what you are going through...
Take care of your self
I know that our perspective and state of mind can do wonders for us too. When I stay focused on results and positive input, it helps a great deal.
I'm a believer in biofeedback: http://nealmiller.org/?page_id=37
Also love this: http://www.johnratey.com/newsite/index.html
The initial symptoms I experienced did subside... I have constant leg weakness or fatigue. I try to keep from getting depressed or down - I think if we can stay positive, it is very beneficial. I wholeheartedly believe in keeping my endorphins pumping as much as possible to feel those natural seratonin effects.
When I need motivation, I go to my audio books, or look for inspiration online. I think it is very important to stay as pumped and positive as we possibly can.