Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Thanks
Since my brain stem lesions were not responding to treatment, I recently had an MRI spectroscopy performed to make sure they were not abscesses or cancer. No dye was used and the pictures were much better. An experienced radiologist can actually tell the degree of damage that has occurred. Trouble is the capability isn't available everywhere. Might be worth asking about though.
http://spinwarp.ucsd.edu/NeuroWeb/Text/mrs-TXT.htm
I think the most powerful document to give any doctor and one they won't dismiss is the Robbie Booker v. GEHC Motion for Leave to Add Punitive Damages. This is because they knew this stuff was toxic befor it was put on the market and before FDA approval.
The FDA has new warnings out as well so the liability is going to shift to the doctors that order them. This the doctors will listen to. After I tell this to my doctors they never ever comfortable order another one so I'm told.
Easym the place I see my neuro at is a Neuro Science Center and they have their own Research Dept. and is quite new, I would guess with the Research Dept they would have the best equipment and this is the first time I've heard it called a MRI Spectroscopy so I will definately will ask, thanks for that piece of information. I will never stop learning about this disease, Thanks Everyone
I get the feeling that their is going to be a new MDL coming down the pike. Millions have been affected.