Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

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ricanfemale30 12/12/2011

This bullshit has robbed me of my freedom dammit!!!! i had a life..a car..freakin useful legs!.. now ima damn captive in my own home!!!..and we all know cuz we have this shit to thank..im so ever lovin bored daily its amazing how boring during the day really is...my daily routine is cook..clean..dog n bills n tv...ive been a lil down lately cuz holy crap im by myself 75% of the entire day..by the time my bf actually comes home n stays home its later in the evening so theres hella free time..yes hobbies hobbies i got hobbies there are no substitute for human interaction!!!!..im going nuts idk wtf to do!!!! ugh a 27yr oldshould not be held captive by ms!! but thats how the cookie crumbles..ive always been self-sustainig but cmon!!! i need a break from my mind...all i do is think..think how would my life b if i wasnt sick...its very lonely in my apt.. if anyone else lived thru we go thru daily they'd be freakin happy with their life...days when i feel like this i want a tall glass of booze...i could use a drink right now..yes its 7am but does time matter when ur life has no meaning of days of the week or time of day?!...bbaahhhhh...i am grateful for my dad cuz that man does everything possible to makr me comfortable..im usually super positive. i guess im havin a lonely slump...need to vent cuz theres no where else to go with all of the emotions i carry on a daily..

CW2008 12/12/2011

Hang in there. I'm sorry you are feeling down at the moment. This is a good place to vent with people who can relate to what you are going through. Sounds like you have the hobbies but the long days alone are really getting to you. Maybe you can find a program or class for a couple of hours during the day where you can be around people. They offer a lot of classes at our community college ranging from exercise, health, photography, to cake decorating and belly dancing? They seem to have something for everyone. A good book or movie doesn't always do the trick. Again, hang in there and know that you are not alone.

lchoppel 12/12/2011

I completely GET IT! Thank goodness I have a job to keep me busy, as on the weekends I go crazy. I'm physically not able to do too much so I revert to watching the idiot box (tv) and get bored with that. I wish I had some more interaction with people too. But I'm not alone like you, I have my family surrounding me. My thoughts go out to you being alone.

CW has the right idea. You need to see if you can enroll in a class or something like that. Maybe see if there is a MS support group close to your home you could go to. Why not volunteer for a hotline? I think you would be very good with that. Volunteer at your MS Society chapter to make calls to other MS patients to talk? You need to find something to do to allow you interaction with other people, you are too much of a social person not to. Start a journal entry here to vent some of your frustrations. That becomes a social means of communicating with others. Also, maybe some friendships will grow to where you can call each other on the phone and talk during the day. Do you have any close DS friends now that you can arrange to call? (you can PM me your number and I will call you during the day). You are so full of life Rican, it pains me to see you suffer so. Find a way to beat this lonliness before your flame goes out.

deleted_user 12/12/2011

So sorry =( Thinking of you ~ Heidi

hmmmingbird 12/12/2011

I second that to find a local support group, if you can. Check with your hospital to see if they know of one.

I initially went two years ago to see what people with MS looked like so I would know what I might expect in the future. I have met some wonderful people there, can confide in one of them, have lots of people I can call.

Sometimes a phone call will work if you can't get out for human interaction. I'm alone most of the time too - widowed - today I just listened to the TV because my goal for today was to wrap Christmas presents and the table is in another room. They are done. Feels good to complete a task.

I really recommend a support group. Between my local group and DS, I have lots of people to talk with who know what I'm going through.

MsRee 12/12/2011

I'm sorry to hear you are going stir crazy in the house. I agree with everyone else, maybe you could find something to get involve with outside of the house. Even if its just 1 day out the week it would get you going and thinking of something different. Best Wishes

koda1 12/12/2011

So sorry you are feeling like crap, I too spend alot of time alone, I have two dogs that keep me going,it is so frustrating though I cant walk them on lesh....one of my boys is an engish staffie and a ball of muscle,I use an elbow cruch so handleing them both is no good. Now the weather is heating up in Aus I take them for swim in our pool,so at least they are getting excersise..
I watch far to much tv...lol..your not alone I'm sure many of us understand ....
Hugs

deleted_user 12/12/2011

Tis the season to feel like you are more on your own than ever. I am doing the school thing from home, but have found that even the course interaction keeps me going more than being bored at home. I agree with CW it is important to do something to feel like you are going towards a goal, instead of just a hobby. Hope your days get better soon!

ricanfemale30 12/13/2011

Thanks everyone..my sad day is over but im still kinda blahh..plus its cold as crap so even if i did wanna n was able to go outside its freakin 32!!! its cold as balls in my basement apt let alone freezin outside..so eehhh i make due..my computer broke so i use the internet from my phone for everything its a pain in the ass..im trying to get my cooking and baking up better cuz in my urban neighborhood word of mouth spreads bout food..my grandma shes 79 still making sofrito..pasteles bread puddings etc n still sells um!! shes sick so she cant make um so i wanted to take over!!! its at least a bit more people oriented as i gotta talk to people bout what food they want blah blah..i babysit my nephew now 2 days out the week so thats cool hes only 8 wks n hes a handful..ive always been alone most my life as my mom was a loner n doesnt like to socialize so i can say its no surprise but sometimes u wanna freakin talk to someone..in the summer time n spring its warmer n i can do more things when weather is warm so i guess call it winter blues..yea that works winter blues

deleted_user 12/13/2011

I am home alone all day as well, and when my husband does get home he wants to "relax" I understand it, but I just want company! A lot of friends don't get it, all they want to do is shop, which is hard when you can't work so no money to spend, or drink, which I don't feel comforable with because when I was "sick" thats how I felt, drunk, 24 hrs a day, but not in the fun way!! I talk to my dog, haha which I feel crazy doing, we have full conversations. I need to find work, where I'm not heavily relied upon, oh life!!! So frustrating!!

mjideas 12/13/2011

I am completly alone. No family, no spouse, no children. My Mom died in 2005 and my boyfriend in 2006. Frankly I used to be so lonely I would get sick and throw up .

I know how it feels. I'm not even in the State I spent most of my life in. This was so unbearable I forced myself to start a home business I could handle from home so I started selling Avon. Then I forced myself to join a church. Great people. Best thing I ever did.

Looking for help I was referred to an agency that helps me hire people who can help me stay home.. Funded thru Medicaid. That is mostly helping me with having someone to talk to.

So that is how I survive. I understand people get down and feel lonely. But you need to look around your life and see what resources you have. You have to accept that your life has changed.

Then you have to reach way down inside of yourself and if you are able, come up with a strategy that can help you cope. In the end only you can really help yourself.

Melanie

deleted_user 12/14/2011

Vent as much as you need. I know the cabin fever can drive you mad - and I'm only on day four fresh out of the hospital. I'd get your hopes up and tell you it gets easier while sitting and staring at the walls, but I won't. It totally wouldn't be fair.

Feel free to message me if you need to let out a good rant. *hugs*

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