Multiple Sclerosis (MS) Support Group
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I was dx in 2005. My primary complaint was MAJOR fatigue, tingling, frequent but small muscle spasms and legs and ankles/feet hurting really bad. For the most part I continue to still have these same symptoms and most of the symptoms are 24/7. I just dont' understand why I can be so tired all the time and my legs hurt all the time. I have not had anything major flareup wise happen to me yet. I've not had any significant numbness or eye trouble. Sometimes I wonder if I even have M.S., but I do know "something" is not right with my body. Does anybody else have this experience?
xaviermom74
Totally understand, I have had slight numbness to fingers and burning to face(left side) and fatigue that is it and this has been going on since 11/07. Most of the time I will have one of the symptoms and it goes away. Suppose to begin paper work for rebif Friday. I am concerned over cost of the drug even though I have insurance.
deleted_user
I totally understand. My major complaint - is my painful legs. They hurt all the time!! It's not RLS, my legs hurt like hell. So painful it's hard to sleep - or do much of anything. Walking with these legs is a chore even with an AFO and cane. These symptoms have not let up for me EVER - been with me before my dx and after. Klonopin has helped - I'd be screaming without it - however it is relentless pain. I hope you find relief - if you do - let me know what helps you!!! In the meantime... know you're not alone.
carolinagirl123
I take COpaxone, my insurance pays 80%, and the remaining 20%, Chronic Disease Fund pays. I could not pay the nearly $300 a month co-pay. Ask Rebif, they should give you information on a compnay that can help you pay for your med. The meds are like $1,200 - $1,400 a month! Who could afford that.
carolinagirl123
I'm sorry you others are having all this pain. Its awful. I get so depressed, frustrated, sad, angry etc. etc. I've tried amtyrpilene thats suppossed to help but i felt like a zombie! And i'm not sure if neuroton helps either. Its like i'm so fatigued and meds just make me feel more drowsy and no significant relief anyway. Its a very hard disease to have. In the meantime, as well, everybody thinks YOU LOOK FINE!
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