Definitely feel you on the fatigue. Been battling this since May as well. Wish I had some advice for you. Hang in their hope it gets better for you soon big health hug.

Hey Keya - I care about how you feel. Im new to this and dont even have a diagnosis yet but learning more about this disease every day. The no 1 problem for many of us seems to be crushing fatigue and how long it takes to get normal things done which other people take for granted. This group has been a great place to share and ask for help and support.
Sending hugs!

I too feel the incredible amount of fatigue that comes with MS. I wish others knew how this feels! Glad you are back! Hugs!

Hey Keya~glad you are back. I feel your pain in people not understanding the ups & downs of MS. Are there any MS support groups in your area? I was very resistant to hanging out with a support group but I'm glad I reached out to them. The group I go to (off & on) is more social than information based. When we go out in public there's this one guy that is priceless, he checks out the bathroom situation first thing & reports back to the group on the distance to the facilities, if there are steps, if there are handrails, in short he's awesome. After he reported back the first social outing I was thinking to myself these are truly my peeps. We only meet 1 time a month. Sometimes it's at a meeting room & we have a guest speaker & then chit chat after. It helps to be in contact with fellow MSers & bounce ideas & solutions to living with MS of each other.
I guess what I'm saying is that you'll never be able to convey what having MS feels like to someone who doesn't have it. I'm dismayed by the lack of support from some in my family that I had previously been close to & now they don't even make an attempt to do a handicap accessible outing. I try to participate but I have stopped explaining why I'm unable to sit outside in July at a park that doesn't have bathroom facilities that are not easily accessible. I have told them it's nice to be invited & then I can participate in the capacity I'm able. Which means I may be able to stay only an hour.
Sorry to ramble. I hope some of what I have said makes sense & hopefully helps some.

I moved last fall and found a new church family a few months ago. They see me using a cane, and if asked, I think I'll say it's for balance, which is (partially) true. I want them to know who I am as a person rather than dismiss me as a disabled person. That may be all in my head, but that's what I believe. So unless asked, I'm not telling. It probably doesn't hurt that I stopped coloring my hair and am now salt-and-pepper gray - I prefer to call it silver.

There's an event at church next month and I would like to help. So I've told them I'd like to volunteer in registration, but will that be indoors or outdoors, and can I sit? One woman said I can use her chair with attached umbrella if it's outdoors, and I will bring flexible ice packs if the day is hot and I have to be outside.

My family - children, parents, siblings - are all supportive. But as we get older, we all have health issues, so it's not a big deal to any of them. I'm still me, just one that needs to make accommodations sometimes.

Yep. I wake up tired. Go through the day tired. And go to bed tired. Then the cycle starts all over.... day after day.

And then there are all the other symptoms!

Hang in there Keya. You will have some better days.

Maybe I'm different from the rest of you. I only sleep 5 or 6 hours a night and if I do get a nap during the day, it's 5 or 10 minutes at best. Sleeping pills don't work for me. I take a Melatonin and 2 Baclofen before bed. I don't have any trouble falling to sleep, just don't ever sleep more than 5 or 6 hours. Fatigue? I feel you!

Gentle hugs, Linda

when i got approved for ssdi years ago my lawyer said fatigue is one of the main reasons people w. ms get approved. i was so bad i have fallen asleep standing up, on the toilet, everywhere! it is awful. and ridiculous really. i was in my 20s and could not stay awake.

I feel your pain!!! Its like just when you think there is no possible human way you could feel flatter, you do! I just finished a 5 day course of iv cortisone for a relapse. Wiped me out so bad I was getting to work in tears at the thought of the day to come. And I try SO hard to stay positive. But it does sometimes wear me down. I got home on Friday afternoon, asked my kids to please let me just sleep. 2,5 hours later. But keeping everything going is also tough. Running a house, looking after kids, working. The one thing I need is rest and that's the one thing I can't have.

Ditto to Squishy and DX. TIRED all day...but still have to work and be mom, cook and housekeeper. Basically I do what I have energy to do and the rest waits. I begrudgingly get help with chores from my teenagers when I really look desperate for help. Getting to sleep is never a problem thanks to 2 Baclofen snd a Tylenol. Trying to be "normal" is a tiring process indeed! Hugs to Keya! :)

Fatigue is the worse. I know it is hard when it seems like no one will even try to understand. I wake up every morning and put on a face that is "normal" in order to go to work. It drains me most days but most people are clueless. I am very open about my MS. My co-workers listen to me complain. Just know you are not alone!

Yeah, I felt really good today so I ran a few errands. Trouble is, I know I need tomorrow to rest. When I feel good I tend to do too much because I have the energy, but I pay for it later.

I am very fortunate to sleep about ten hours at night, just with one sleeping pill. And a lot of times I fall asleep in my chair in the evening before I even go to bed.