Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Am I the only one that is upset with Isthather's reply? When someone is on a quest for diagnoses a comment like that is not necessary. She said that all of her drs. came back with the same opinion...well good for her because she has not had to deal with a "bad" doctor. There are plenty of those out there and some of us get stuck with them while contiuning to get sicker. She said "DO NOT wish MS on yourself." I highly doubt that PaintWarrior is doing that, she is simply saying that all of her symptoms line up and a lot of other things have been ruled out. It's not about wishing a MS DX on yourself, it's about the huge relief you get when someone says what you've known all along in your heart and getting on meds so you can move on.
Ok, I am done! I just found that comment to be not positive at all and isn't that what we are all here for...positivness?
i'm so very sorry to hear all of what you've been going through. it absolutly sucks that they don't believe you because they're not knowledgable in this area of expertise. my best friend was dx'd with lupus years ago, and at the time, lived in what she called a "hick town" in Pennsylvania. none of the doctors there even heard of lupus at the time and they too, chalked her symptoms up to being in her head. she had to fight like hell with the doctors there and still got absolutely nowhere. she then decided, it was best to visit a neuro in another state that was populated much heavier than where she was in PA. that turned out to be the best choice she'd ever made because she was dx'd and treated, almost right away.
i know you've already spent possibly hundreds, if not thousands, but why not look into another area for help? you may just have better luck with a dfferent doctor outside of TX.
i do sincerely hope it all works out, and that, even if you don't have MS, that you're condidtion is identified and treatable.
God Bless
THANKS SOOOO MUCH FOR YOU COMMENTS!!!! I LOVED THEM!!!! I LOVE THE 3 THINGS YOU LISTED & THAT THEY ARE ALL IDIOTS!!!! I HAVE REALLY REALLY BEEN THROUGH SOME HORRIBLE HORRIBLE IDIOTS!!!!!! OMG!!!!! THE HORROR STORIES I COULD TELL YOU ALL!!!!!!! NIGHTMARE ON ELMSTREET HORROR SHIT!!!!!
I LOVE THE FIGHT/WARRIOR MESSAGE!!!!!!!!!!! GREAT STUFF!!!!
THANKS SOOOO MUCH FOR YOUR SUPPORT!!!!! AND, FOR YOUR COMMENTS!!!!
ABSOLUTEY!!!!!! I TOTALLY AGREE WITH YOUR COMMENTS! YOU GUYS ARE SOOO GREAT & SOOO SWEET!!!!! ALL OF YOU GUYS!!!!!!! THANK YOU SOOOO MUCH!!! ALL OF THESE COMMENTS MEAN SOOO MUCH TO ME!!! MAKES ME FEEL STRONGER TO KNOW THAT THERE ARE SOOO MANY LIKE ME & THAT & HAVE SOOOO MUCH SUPPORT!!!
THANKS FOR YOUR COMMENTS YOU TOO! AND, ALL FOR THAT MATTER!
I HAVE SEEN NO FEMALE NEUROS! I DID SEE HIS NP WHO WAS A FEMALE & SHE WAS GREAT!!!! BUT HE WAS TERRIBLE!!!! STUPID STUPID LITTLE MAN!!!!!
AND, YES!!!!! I DO NEED SOMEBODY TO GO WITH ME!!!!! I KEEP BEGGING MY FRIEND TO GO, BUT SHE IS A TEACHER AT A COLLEGE & SHE SAYS THAT SHE CAN'T BECAUSE OF HERE JOB!!! SHE LOVES & SUPPORTS ME BUT DOESN'T WANT TO LOSE HER JOB!
THEY JUST TREAT ME LIKE CRAP & RUN OVER ME ALL THE TIME!!!! THEY KNOW THAT I HAVE NOBODY WITH ME OR TO FIGHT FOR ME, OR TO STAND UP FOR ME SO THEY JUST DOZE ME DOWN & ENJOY THE HELL OUT OF IT!!!! I HATE THEM!!! AND, I HATE DOING ALL OF THIS ALONE!!!! I WOULD LOVE TO HAVE YOU HERE & TO GO WITH ME!!!! I COULD USE SOMEBODY ELSE SMART WITH A MOUTH TO GO WITH ME!!!!!!
GOD!!!!! THANK YOU SOOOO MUCH FOR THIS COMMENT!!!!!!
ABSOLUTEY!!!! THEY NEED TO HAVE A FREAKING BRAIN, & USE THE DAMNED THING!!!!! AND, THINK FOR THEMSELVES & TOTALLY THINK OUTSIDE THE BOX!!!!
I MEAN HOW CAN ANY DOCTOR LOOK AT ANY OF THIS & NOT BE FREAKING ALARMED BY IT??? AND NOT THINK OMG!!!! SOMETHING IS SERIOULSY WRONG WITH THIS WOMAN & SOMEBODY NEEDS TO FIND OUT WHAT IT IS & HELP HER!!!! AND, THEN DO EVERYTHING HUMANLY POSSIBLE TO DO THAT!!!!
JUST FREAKING UNBELIEVABLE!!!!! DOCTORS ARE ALL ABOUT MONEY NOW!!!! NOT HELPING PATIENTS!!!!
Unfortunately, it is what happened to Paintwarrior that happens to most women. We run from one neuro to another until one listens...and it is usually a woman neuro that will hear our cries, listen to our stories and begin to weave a dx for us.
Lucky for Isthather that things went smoothly for her. For most of us, it sure doesn't.
I would give anything if it had went that great for me!!!