Multiple Sclerosis (MS) Support Group

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kathi6635 05/29/2012

Hi, I'm getting really concerned with all this new jerking going on. The other day I was walking to the waste basket with some trash in my right hand and my arm jerked out so hard I almost threw the trash across the room.

Then I needed to hand my license to a clerk and when I went to hand it to her my hand and arm jerked so bad I threw it at her....I felt like such a fool and so embarrassed.

Then last night evertime I started to fall to sleep I would jerk so hard it would wake me up...it was either an arm or a leg or my left shoulder.

My left should jerked hard three times then one time so hard I thought it would hurt or be sore this morning but I feel nothing wrong with it.

I was so scared with that last jerk because it felt so strange inside my body like electricity and someone actually yanking on my shoulder.

Has anyone had this happened before and what could be causing this to happen?

Im sorry I haven't been around to help with support to everyone, I'm battling a very bad depression right now...Hope to be back soon.

Kath

mmthlvr 05/29/2012

I have really radical jerks, not the normal kind. Have you been diag yet? Mine get worse with the heat, along with every other symptom. Gotta love summer, NOT.
Hugs,
Tammy

mjideas 05/29/2012

Sorry Kath. Sounds like an MS thing. Don't know your medical history but jerking is a word used by many of us for symptoms like these. I get jerking in my hip flexors that last a long time. These symptoms are called Paroxysmal Symptoms. The article below does a pretty good job of describing it.

http://www.unitedspinal.org/msscene/2008/11/18/paroxysmal-symptoms-of-multiple-sclerosis-they-come-and-they-go/

There are 3 choices of medicine available to try and calm things down.

There are a lot of difficult things that come with MS. The key to trying to live in comfort is to learn how to manage it. A good Doctor would be helpful but that is not always easy to find.

I manage by research - trying to find out what is available to treat the problem. And you are already on that path by being a member here where there is a vast amount of knowledge and experience.

Hope you feel better soon.

Melanie

deleted_user 05/30/2012

Melanie

Your link provides absolutely excellent info regarding real exaserbations vs pseudo..this is what I was referring to as anxiety for pseudo) in other post.

deleted_user 05/30/2012

I have these jerks but mostly when I lay down. I also have spasms in the left side of my mouth when I lay down. I shake so bad I can't hold a cup of coffee to my mouth. Doc said its tremors and spasms. She put me on meds for it ( but cant remember what) it knocked me out so I can't take it :-/

kathi6635 05/30/2012

Thank you all for your help. Melanie that article is priceless, thank you so much.

Hope you are all well

Kath

I also have the mouth spasms when I lay down and also tongue spasms....lips tingle anytime of day.

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