Up at 5:30, brush teeth, make husband's lunch, prepare AM fruit for us, make breakfast, put away pots and pans from last night. Have coffee and breakfast while reading the paper with husband. Pull something out for dinner, husband to work, bathrooming and shower, read and write e mails, surf internet and on with my day. Very rote.

I know how that is--I wake in a lot of pain so I have to take my meds before I can move too. What I do is wake with an alarm a few hours before I intend to wake--that's 7am but you could pick any time. Then I take the pain pill, go back to sleep a bit (if I can) and by the time I wake in an hour or two the pill is in effect and the pain is less
Then I do my toilet stuff but I def climb back into bed. I spend almost every day in bed propped up on pillows or laying down. So Im with you--feel worthless sometimes. But this is what my body is capable of--very little movement or the pain goes to the extreme and I go to the ER.
I do exercise though! Any little bit of exercise you can stand is healthy! Sitting in a chair lifting a can of veggies is better than doing nothing. Also, the MS society (one of them) will send you a free MS yoga DVD --I have one! Very gentle yoga to help stretch out some of those bed-related cramped up muscles

I like to walk--just a little ways. I worked myself up to 3 blocks there and 3 blocks back--with a rest in between. I don't even have to use my cane that much anymore since starting my supplement regimen, walking and strengthening my legs...

After that I draw or paint most every day all day. Hobbies keep me sane seeing as moving is not my strong suit anymore.

Hang in there!

I get UP. Yes, get up and MOVE MOVE MOVE. I find if I wake up in the middle of the night and I am in pain, I get up even then and MOVE. After I get up and move around for awhile the pain often subsides to a point that I can get back to sleep without taking more pills.
The first thing I do (whether I like it or not) is wash my old cat's eyes. She has a chronic infection and she cries until you wash her eyes. Then comes me.
The cat is always first! :)

So glad to get replies, i dont feel so useless now. I agree with the one post about MOVE MOVE MOVE. That is the hardest thing, but it does get your body going. My answer to that is, a have a little dog
(6 lbs.) and thats how I get moving as I have to take her out. There have been some days that i just couldnt but most of the time i make myself. We due wait a few minutes though after ive had at least my meds and 1 cup of coffee, I just cant spring out of bed and take her out, so after about 30 minutes of being awake I take her out, then im back in bed, with the tv, laptop waiting on my meds to kick in more. I like that idea about taking the meds earlier and then going back to sleep, thats a good idea too. I actually have that MS SOciety dvd about exercising. Shame on me, i havent even looked at it. There are some days, not many though where I can take a Nuvigil and it does a good job of giving me some energy and I can get alot of things done, its almost like some kind of speed. I cant take it everyday, i think its too strong and i do feel a little drugged on it. Thanks for the replies, I do need to start exercising, but im so inconsistant. But I think i really need too since my neurologist told me my upper strength is stronger than my lower body. I was a little surprised to hear that, my arms are now stronger than my legs :(

What exercises can you do? I am so in need of something. I can not walk without a cane, and then not very far. 200 feet. I am very weak and I need to get stronger.