Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This is for those who dont work anymore. I was jsut wondering what you guys do when you first wake up in the mornings? My routine is, of course, is go to the bathroom, then Im back under the covers with the tv on and my laptop with my cup of coffee. MY legs hurt really bad in the mornings. I take my meds as soon as I wake up then wait til it kicks in before I get out of bed and start moving about.. I usually get up in 2 hs. , on really bad days, Ii stay in longer. I was thinking "Is this the right thing to do?" I mean, am I being lazy? I think about all the people out there working (like i used too) and feel like such a deadheat, but , am so blessed to have this luxury to be able to stay home and rest (in pain). I miss working, I dont get out and do to much anymore. I need to get up and exercise, but i stopped that too. So, whats your a.m. story?
Then I do my toilet stuff but I def climb back into bed. I spend almost every day in bed propped up on pillows or laying down. So Im with you--feel worthless sometimes. But this is what my body is capable of--very little movement or the pain goes to the extreme and I go to the ER.
I do exercise though! Any little bit of exercise you can stand is healthy! Sitting in a chair lifting a can of veggies is better than doing nothing. Also, the MS society (one of them) will send you a free MS yoga DVD --I have one! Very gentle yoga to help stretch out some of those bed-related cramped up muscles
I like to walk--just a little ways. I worked myself up to 3 blocks there and 3 blocks back--with a rest in between. I don't even have to use my cane that much anymore since starting my supplement regimen, walking and strengthening my legs...
After that I draw or paint most every day all day. Hobbies keep me sane seeing as moving is not my strong suit anymore.
Hang in there!
The first thing I do (whether I like it or not) is wash my old cat's eyes. She has a chronic infection and she cries until you wash her eyes. Then comes me.
The cat is always first! :)
(6 lbs.) and thats how I get moving as I have to take her out. There have been some days that i just couldnt but most of the time i make myself. We due wait a few minutes though after ive had at least my meds and 1 cup of coffee, I just cant spring out of bed and take her out, so after about 30 minutes of being awake I take her out, then im back in bed, with the tv, laptop waiting on my meds to kick in more. I like that idea about taking the meds earlier and then going back to sleep, thats a good idea too. I actually have that MS SOciety dvd about exercising. Shame on me, i havent even looked at it. There are some days, not many though where I can take a Nuvigil and it does a good job of giving me some energy and I can get alot of things done, its almost like some kind of speed. I cant take it everyday, i think its too strong and i do feel a little drugged on it. Thanks for the replies, I do need to start exercising, but im so inconsistant. But I think i really need too since my neurologist told me my upper strength is stronger than my lower body. I was a little surprised to hear that, my arms are now stronger than my legs :(