Multiple Sclerosis (MS) Support Group

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luvmekk 02/22/2013

I am 37 yrs old, have had MS dxd since 2007. I am in extreme pain, was on Hydrocodone 7.5/325 since my dx. New dr with UHC took me from 150 to 120, as of 2/1/13. Its not like I had back surgery 7 yrs ago. I have a chronic, painful, crippiling disease in which I am experiencing all of these issues and ofcourse as you know a whole lot more. My question is why do people that actually need pain meds cant get them, but you can buy them from someone one the street, who has no problem what-so-ever?
Signed,
Disgusted

malinaC505 02/22/2013

i agree completely, since you're in colorado - i'd try marijuana. they've found it alters the emotional response to pain and that's why it's helpful,

i'd try some brownies but start off with half and then adjust if that's not enough. i'd never okay smoking anything though, because it's not good for your lungs

deleted_user 02/22/2013

I would get to a hemp clinic and roll one up. Head to the mountains!!!

chicagogrl 02/22/2013

I'm so sorry to hear of your predicament. I feel the same way. People, doctors included, don't seem to understand this is a painful disease. It drives me crazy. I'm always being questioned, as though I'm some kind of crack head on the street. It's ridiculous.

Maybe try a pain management specialist?

ezone 02/22/2013

Go to a pain clinic. There is a subgroup here for people w/ pain. I dont know it but Lynne does. Ck w/ her (Lchoppel). MS dr. should understand pain.

AusSue 02/24/2013

If thats steroids/cortisone you are on please be careful as it has a lot of side effects.
I have just been through 11 months in a moon/cam boot before surgery so I could walk again. I had major surgery on my foot & 8 weeks in plaster & long recovery time. Had that surgery 6 September & only got a shoe on the foot in January. Still relearning how to walk on it properly & any distance.
My knees are wrecked but not having anything done about them as couldn't face more surgery. Also got problems with my back, all of these have been made worse by long use of cprtisone/steroids.
Also because of it my back spasms & I have problems with it (spur or something).
Wish I had known what I know now before I had so many courses of the drip & then continuos tablets.
Take care of yourself.

mmthlvr 02/24/2013

I have been on Vicodin for about 12yrs, total of 4 per day, 5-500. I have had the same Dr for 12yrs. I'm going to be moving to Oregon this summer and several of the Dr.s offices I've called won't even take me because I'm on a narcotic. REALLY!!!!

It's not like I take 10 a day & have 6 different Dr's. Besides MS, I have spinal stenosis & osteoarthritis. Those of us who truly need it are getting screwed over because of those who abuse it.

Also Disgusted

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