Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I don't want to rub it into anyone's face, I know having MS is hard and it changes everything, but I need to brag about this...
I am almost completely symptom free! Last August I thought my life was over when I woke up one morning and had to be hospitalized. I couldn't walk, I went from having double vision to having no vision at all. I couldn't form sentences, I slurred my words. I couldn't hear out of one ear, my eye hurt so bad I would wake up in the middle of the night in horrible pain and beg the nurses to give me something to make it stop. I had a tube inserted into my heart because all of the veins in my arms wouldn't hold an IV any longer... they inserted the tube in my hospital bed, there was blood on the wall for days from it.
I couldn't see or walk until October, and I couldn't do either well until February. I was absolutely sure my life was over and everything that I had hoped and dreamed of doing was gone for good. At 22 I gave up.
Almost exactly one year later I am doing better than I was, than I have been since I was diagnosed with another chronic illness at 16. I am almost entirely symptom free. I haven't woken up in months and tried to see what part of my body doesn't work today.
I no longer dread MS. I am happier than I remember being in years. My being sick has even encouraged my boyfriend to go out and do what he wants... He is now a violin teacher because he realized life is too short to not be doing something that makes you happy.
I'm sorry to brag about my body working when so many other people here are having a horrible time... I just thought it was time to see a positive post about someone getting on with their life, instead of someone's life being stalled.
I am almost completely symptom free! Last August I thought my life was over when I woke up one morning and had to be hospitalized. I couldn't walk, I went from having double vision to having no vision at all. I couldn't form sentences, I slurred my words. I couldn't hear out of one ear, my eye hurt so bad I would wake up in the middle of the night in horrible pain and beg the nurses to give me something to make it stop. I had a tube inserted into my heart because all of the veins in my arms wouldn't hold an IV any longer... they inserted the tube in my hospital bed, there was blood on the wall for days from it.
I couldn't see or walk until October, and I couldn't do either well until February. I was absolutely sure my life was over and everything that I had hoped and dreamed of doing was gone for good. At 22 I gave up.
Almost exactly one year later I am doing better than I was, than I have been since I was diagnosed with another chronic illness at 16. I am almost entirely symptom free. I haven't woken up in months and tried to see what part of my body doesn't work today.
I no longer dread MS. I am happier than I remember being in years. My being sick has even encouraged my boyfriend to go out and do what he wants... He is now a violin teacher because he realized life is too short to not be doing something that makes you happy.
I'm sorry to brag about my body working when so many other people here are having a horrible time... I just thought it was time to see a positive post about someone getting on with their life, instead of someone's life being stalled.
Good for you!
Gina :)
I know I get excited when I feel less problems and I would like to shout about it...but then no one around even knows that I was not feeling good before....so, I understand....shout.
Thank you everyone for being happy for me as well, DMD's do work, and MS doesn't have to be the end of your life. It's not all that bad.
Lorrie