Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Here is some background
I have had MS for 20 yrs. Started out tingling in feet 2 months before daughter was born. first white lie did not tell anyone until I saw doc day after daughter was born saw doc next day. Start 3 months of testing local nuero guy. came back probable MS. So I went to a teaching hospital Rush in chicago their MS clinic great place, doc's are all professer at Rush university I think everyone should be see at a teaching hospital and by doc's who 90% of their patients have MS if their is a facilty by them. They have way mor info than some of suburban neuro doc's that treat all neuto illnesses. Still omit or white lie to my little girl she has enough on her plate dealing with parents divorsing and a junior at u of i working on her bio degree hoping to get into dental school. Wife walked out in may left me to sell house this is first venue that I can chat with people who understand MS. Did the suicide thing 4 and 5 years ago and am very happy it did not work. I'M stable and saw Srink yesterday for regular visit and refill of anti kill meds Lexapro really helps along with cognitive thearpy. I'm a pin cushion now started copaxone 1-5-08 never know if working only as it's a prevenative med so you hope it's doing it's thing did the betasuron that sucked bad SA feeling like shit all the time.
Was in rush sept 07 for 5 days of iv steriods
nothing like felling you drank 4 cups of coffee for 120 hours straight again did not tell kid until, I was out been 8 years since had to be ha steriods. so not doing to bad.
This is first time I have really openup to people I tend to have my game face on and it says happy. Oh before I go on sorry for the poor english my worse subject this thing does not have sell and gramer check and my wife took the dictionary with her. I will have to get new one dictionary that is.
So I'm done rambling so please be honest am I fucked in the brain that I have a handle on my MS or just struglig like evey one else.
Thank you ahead of time for any input
charchar
I have had MS for 20 yrs. Started out tingling in feet 2 months before daughter was born. first white lie did not tell anyone until I saw doc day after daughter was born saw doc next day. Start 3 months of testing local nuero guy. came back probable MS. So I went to a teaching hospital Rush in chicago their MS clinic great place, doc's are all professer at Rush university I think everyone should be see at a teaching hospital and by doc's who 90% of their patients have MS if their is a facilty by them. They have way mor info than some of suburban neuro doc's that treat all neuto illnesses. Still omit or white lie to my little girl she has enough on her plate dealing with parents divorsing and a junior at u of i working on her bio degree hoping to get into dental school. Wife walked out in may left me to sell house this is first venue that I can chat with people who understand MS. Did the suicide thing 4 and 5 years ago and am very happy it did not work. I'M stable and saw Srink yesterday for regular visit and refill of anti kill meds Lexapro really helps along with cognitive thearpy. I'm a pin cushion now started copaxone 1-5-08 never know if working only as it's a prevenative med so you hope it's doing it's thing did the betasuron that sucked bad SA feeling like shit all the time.
Was in rush sept 07 for 5 days of iv steriods
nothing like felling you drank 4 cups of coffee for 120 hours straight again did not tell kid until, I was out been 8 years since had to be ha steriods. so not doing to bad.
This is first time I have really openup to people I tend to have my game face on and it says happy. Oh before I go on sorry for the poor english my worse subject this thing does not have sell and gramer check and my wife took the dictionary with her. I will have to get new one dictionary that is.
So I'm done rambling so please be honest am I fucked in the brain that I have a handle on my MS or just struglig like evey one else.
Thank you ahead of time for any input
charchar
I found it good for info and now I do not feel so alone.
*hugs*
Copaxone would be the drug I would do if I could get it for FREE. Also, I did betaseron 8+ years, so you'd have to talk me into jabbing myself again. Whatever you think works for you is fine. I do a 1000mg Vitamin D along with fresh country air and 5 miles of walking almost every day. Those therapies work for me. Oh, yeah, and I love a good glass of wine each evening though I try to skip to every other...LOL
Just living my life and trying not to focus on the challenges. Like I said, it isn't going to kill me... xoxoxo Cj (Cindyjo)
Sounds like you have good neuro so stick with it. Fire away any questions you here & you will find understanding here. It is a great group (wish I hd found it earlier). Glad you are finally sharing as I am sure it will help you too
Hugs, AusSue