Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
mamak1118
I have an appointment with my pain mgmt doctor today, because what he gave me is not helping. I have to tell him that I've been taking more of the Norco than he prescribed, which I know is a mortal sin. Last time I tried to explain the type of pain I was having, he looked a little dubious. How do you explain that it hurts to have air (especially cold) hit your skin? That it hurts to have somebody even act like they're going to touch you, because your nerve endings "jump"? That when you turn off the cold air and start to get hot, your legs ache like you've just run a marathon? That typing, sorting papers, writing all hurt your fingers and arms. This all sounds so lame to me, and I'm sure it will to him as well. I'm almost scared to go to my appointment.
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You have found the WRONG doctor...PERIOD!
Find another one that actually cares about you & your health!
Trust me! I have a Neuro. that does...they DO exist! It may take what seems like forever to find the right doctor or specialist...but DON'T GIVE UP the search!
Your life & your health is at stake here & you deserve to not just sit & waste away!...IT IS EVERY HUMANS RIGHT TO HAVE THE BEST QUALITY OF LIFE THAT IS POSSIBLE!...
GO GET IT MY FRIEND!
Take care,
Stay sane!
from the National MS Society:
"Pain syndromes are common in MS. In one study, 55% of people with MS had clinically significant pain at some time. Almost half (48%) were troubled by chronic pain. This study suggested that factors such as age at onset, length of time with MS, or degree of disability played no part in distinguishing the people with pain from the people who were pain free. The study also indicated that twice as many women as men experienced pain as part of their MS."
http://www.nationalmssociety.org/about-multiple-sclerosis/what-we-know-about-ms/symptoms/pain/index.aspx
From WebMD:
"When most people think of multiple sclerosis, they think of a disease that causes symptoms of weakness and motor problems -- not pain.
"About 10 or 20 years ago, there was a saying that MS causes all kinds of trouble but doesn't cause pain, which really isn't true," says Francois Bethoux, MD, director of rehabilitation services at the Mellen Center for Multiple Sclerosis Treatment and Research at The Cleveland Clinic.
"In a national survey of more than 7,000 MS patients, 70% of them had experienced some kind of pain, and at least 50% were experiencing some kind of pain at the time of the survey," Bethoux says."
http://www.webmd.com/multiple-sclerosis/guide/treating-multiple-sclerosis-pain
Kristi