Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This community is a place where members can discuss current events and weigh in on what's going on in the world.
I've just adapted by wearing really thick (overnight) variety pads, day and night. I sometimes have to change them as often as 3 times a day. If I didn't, I would be a soggy mess. At least with the pads, you don't have to worry as much.
It's a nuisance, but it beats worrying about soiling your clothes.
I think this has helped me a little:
[1] I picture myself arriving home & going to do very specific things in a specific order before finally going to the restroom (try to break your brain's habit of triggering what you're not ready for), &
[2] I drink lots of water before bed so that when I wake w/ a full bladder, I have practice time of holding it, getting used to the feeling & again, envisioning myself being in control, doing what I elect to do before I finally go to the restroom.
Hope that makes sense; hope that helps (I'm not sure that I even articulated it in a sensible way) ~ GOOD LUCK!
Best advice I can give is to wear a protective "guard"... You can still go through them and soil your clothing, but in my case, it gives me enough time to get to a restroom.
If your Urologist suggests "bladder training" -- and you have MS -- tell him/her so. With me, bladder training just resulted in a lot of extra laundry.
And wearing a thick sanitary pad to events does help me feel more confident that I have a little extra time to get to the toilet. Hoping I can manage using these techniques.
In the meantime I would wear the incontinence pants to give you a sense of security. You can get them in a variety of different sizes (hold different amount of leakage) & as you get more control decrease the size of the pants/pads.
That might give you more confidence & as you train your bladder to wait, last longer & count to last longer too.
Take care & try not to stress too as that doesnt help at all
I try all types of mind distractions. Concentrating on objects I see I around the room,counting, anything to distract my mind.It is a really crazy thing.
If I really have to "go" but am no where close to a restroom, I can seem to make my way to a restroom just fine and even wait a little while if I need to if one isn't available. But, the closer I get to the actual restroom and then the closer I get to the toilet... the more trouble I have. If I get into a public restroom and then find there's a line once inside... it takes a minute or two to adjust my expectations. Then, I have to actually hypnotize myself... getting into a zone of sorts and telling myself to "hold it," etc... until my turn comes up.
Then of course once it is my turn, the mental urge hits again and it's always a struggle to move fast enough to close the stall door, hang my bag, and get it all done in time. Of course, if I had to, I would have been able to wait longer away from a restroom... but the toilet and even the restroom provide some sort of mental cue I can't seem to overcome.
I used to think it couldn't be MS, because it seemed so related to mental cues rather than the sort of incontinence I used to imagine being associated with MS... which I always thought would be totally out of my control. But, I do find success by getting into a self hypnotic zone... so gratefully... things are good for now.
If I had any advice to give, it would be to learn how to do self hypnosis, "go" when you don't think you have to (if you are out and about with an opportunity), and drink more when you have easy access to a toilet. I actually find urge incontinence to be worse when I am less hydrated... so maybe drinking more might help. I also keep the toilet seat lid up at home as much as possible, because sometimes the act of bending over to lift the toilet seat lid makes it even harder to keep control. The pelvic floor exercise idea sounds good too... that's something I'll try. Of course, I have resorted to crossing my legs at times... which works great... boy, I hope I'm not alone. :)