From your profile it looks like you haven't started an MS med yet? It looks like you will soon. Lesions aren't static, the constantly form, grow heal, get smaller or disappear. At first when diagnosed I didn't realize the heal and disappear, I though how was my brain gonna have room for new lesions?

There is a name for small dot lesion "puncuate" and I read in a post on another site,it is standard procedure when reading MRI to not measure an individual lesion if it is less than 3mm in size. So a lesion not described as puncuate without a measured size is between a dot & 3mm.

Then there is a name for very large lesions, which aren't common but do happen....Tumafactive lesion. If the peron is not already know to have MS, the MRI show the lesion and it can result in a brain biopsy to determine what the shape on the MRI actually is.

http://www.dailystrength.org/c/Multiple_Sclerosis_MS/forum/7767468-tumefactive-lesion

And I have a handy-dandy book I bought on MS MRI's on page 7, my notes I took when I read the book says."The average lesion size has been reported to be 7mm in nominal diameter and most MS lesions are smaller than 1 cm in diameter" and "MS lesions are usually small but the diameter may vary from a few millimeters to several centimeters" From MRI Atlas of MS lesions by M.A Sahraian & E.-W. Radue.

MS lesions can also mesh together called "confluent" and create all kinds of large shapes, although the normal shape is oval and 7mm in diameter.
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I just looked at your profile & read your last Journal entry. I saw you were not diagnosed with MS yet, another possibility that was being considered was TM----I don't know what TM stands for. The fact that you had a lesion grow & another show up very much supports an MS diagnosis...but I don't know what TM is. Your journal says your brain lesion was abnormal for MS. Did the doc explain how it was abnormal for MS?

Thanks for the info!!!

Yeah...I have yet to be diagnosed with MS. So I have not started taking MS meds. Altho...I think that will change this week. My Neuro said that I need to have two lesions to be diagnosed and I had two lesions( now 3) one in my c-spine and one in my brain. But the one in my brain was not in a typical spot that most MS lesions are at (not near the ventricles??) But that they were going to watch me closely to see if anything changes...Until then he said that he will be saying that I have Transverse Myelitis (TM) but that is a one time deal u get it and it goes away (u are left with lesions but u dont get anymore). So that is not what I have...my lesion was only 3.4 mm and is now 10 mm and my new lesion is 4mm.

Thanks again for all the info!!! I will keep u posted on what happens at my apt.

They did that with me at first-Said it probably wwas Transverse Myelitis but then came the MS Diagnosis.

I am one of those lucky few (sarcasm) that has a Tumefactive lesion in the left temporal occipatal lobe on my last scan a few weeks ago-I have now been taken off Rebif and just had my first Tysabri infusion a couple of weeks ago-good luck lotusflower with finally getting some answers for yourself, keep us advised.

Sam

I HATE THIS DISEASE. i just came from the doctor at 4;30 today. he said it is not the size of the lesion, but where the lesion is located. he said it could be a small one and depending on where it is you could be wheelchair bound overnight.

and i guess he was not happy i was off my copaxone. so, i am back on it. he said there will be an oral pill come april for us. he just got back from a meeting in germany and promised it would be here.

lorrie

Got the results of my Friday MRI. 2 new Leisons on my back. Not active though. I'm still not sure what it all means. There active or not. There' re there and no one knows why. You stay on your meds and shit still happens. The meds are all different and how can you tell if they are working. I take my shots and still get new leisons. Yet the DR doesn't want to try anything different. It's just another day.

My friend had 4 tumefactive relapses over 14 years. When he had the last one, they trapped him in the hospital and did nothing for him. He tried to leave but they restrained him. They stuck him in a corner and did nothing for him. When it got really bad he had a seizure and still they left him. Eventually he went comatose and they called his family (33 hours later) to say he was in the hospital. The doctor wanted to know if they would donate his organs. This was pretty disgusting because they made him get worse on purpose. They figured ah, this is your 4th tumefactive lesion, you've had enough medical resources. Let's take your organs.

The drs had to hide that they were harming him on purpose so they gave him no painkillers. If they had givenh him painkillers they would have had to say why he was in pain i.e. they were doing nothing to help him...

When he started to writhe around in pain, they paralysed him with that stuff (haldol) they give crazy people. This stuff doesn't kill pain just stops you from moving. My friend wasn't crazy. He was just in horrendous pain. He had ICP nine times the norm. That's a pretty atrocious headache.

This happened at the Toronto Western Hospital. His dr was Richard Wennberg and some others. There was a court case.

Anyway, these drs will let you get away with one or two relapses but then they fake your condition and make you look dead so your family says yes to donation. The cutting out of your organs will actually kill you.

Tumefactive is the best way for drs to get organs. The leison is big, and the edema, so if they leave it, it progresses faster than regular ms.

You guys are in great danger. I will come back and tell more if you are interested. My friend only survived as long as he did because his mother was a fighter. For the last relapse she wasn't told my friend was in the hospital until they had had their way with him.