Multiple Sclerosis (MS) Support Group

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Eloise 03/19/2009

As I write this, my right foot is 'seizing up' like it is in a major Charlie Horse. For a couple of minutes I couldn't bend my toes--they were locked in position. Now they're curling and uncurling painfully. Then the left foot did the same thing. Right now, the left is calm but the right is still really stiff and if I move the wrong way, it will lock up on me again. Has anyone out there experienced this or know what the heck it is? I believe it's related to muscles and nerves? It's the craziest (and rather painful I might add) thing and is more than the average 'Charlie Horse' I've experienced every now and again in the past.

I'm on steroids for another medical condition and these have been keeping the MS at bay. Is this MS? Maybe something else? Inquiring minds want to know!

Thanks, friends!

Michelle

AllieMarie 03/23/2009

I have experienced this along my whole side before. I think the feet seem extra painful idk why but foot cramps are TERRIBLE. I have found pot to be helpful in at least calming me down so I can relax and let my muscles relaxe as well. I live in KS so it is totally illegal and I think it is RIDICULOUS that I can't use a natural herb to help me but the docs will write prescriptions for narcotic pain relievers all day long. WTF is up with our state/country????

deleted_user 03/23/2009

I experienced the same thing only with horrible intense electric pain.

circle123 03/24/2009

this happens to me all the time.. my legs get restless and I'll shift them a little.. then my feet go crazy with the cramps and junk. I've had this before ms though..

its like the feeling you get in your hands from scissors when you've been cutting for too long.. or if you're left handed like me and use right handed scissors

marilyn4342 03/24/2009

I am with Sentient- the pain is electric to me= is there anything we MS'ers don't suffer from? Mine is my left foot and leg and my left shoulder.

deleted_user 03/25/2009

I don't know what it is. Occasionally both my father & I get charlie horses at night. When I kind of become alert while sleeping and my calves are tightening up. I will jump out of bed immediately to start hobbling on it. Because the charlie horse is not as bad if I get up and move on it. I had some cramps in my feet for a few months. I though that was a variation of calf charlie horses. Rubbing them would my
solution if it causes sleep issues. I thought they were because I do not walk as much. Before it gets to a point I have to rub it, if it happens often I will try bannana's, for potassium. That's what I thought a person was suppose to do for charlie horses, muscle cramp that happen often. I also thought that while using steroids, a person is suppose to eat a lot of potassium not too much salt. At least that's what my neuro told me the first time I used steroids.

Your might be cramping on steroids... maybe you need potassium: Raisens & Bannanas.

Eloise 03/25/2009

I hadn't even thought of steroids as the culprit. Makes sense, especially since I've been on them for asthma for about 4 weeks now. Thanks for the idea/solution...especially about eating a banana!

rhonda1964 03/26/2009

My newest trick is to have this happen to my left thumb and associated joints....feels like they've locked up with a charlie horse??? (and I'm a lefty-YIKES)

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