Multiple Sclerosis (MS) Support Group

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/ Multiple Sclerosis (MS) Support Group

Have you heard about Ocrevus?!

Anne8
Anne8

It seems like they've finally found a treatment for progressive MS!!!!!!!! Anyone looking into it? (I have to wait another 6 months to see if the EU approves it.) http://www.nationalmssociety.org/About-the-Society/News/FDA-Approves-Ocrevus


lorrieonline
lorrieonline
I've been hearing about this one and thinking I probably won't take this one either. If the doctor can convince me that I wouldn't be bothered by the side effects, it might be a consideration. I'm just afraid of anything that compromises the immune system.
Anne8
Anne8
Yeah, it makes me a bit nervous, but as I am PPMS, this it the first time they have come up with something.
lorrieonline
lorrieonline
I've also been PPMS for quite a while. I just read an article that mentioned exercising was better than all of the so-called MS treatments. With that in mind, I keep trying to get back in the exercise mode. I'll see if I can find articles on exercise.
Anne8
Anne8
(SPMS, right?) I wish I didn't give up yoga for the gym over 2 years ago. I didn't have time to do both & I miss the stretching. In the last week or two the incontinence is more frequent. . .I am feeling pretty down.
sexysub56
sexysub56
Needing a walker and a wheelchair. I'd take it.
AWDESIGNS8
AWDESIGNS8
im rrms and thinking on taking this i just want to get back on track
lorrieonline
lorrieonline
I've starting doing kegels along with my exercises and they seem to help. I made it through church without a problem and a few other things too. I have a walker and a wheelchair and my goal is to stay upright and not use them. It is helpful when I have to have them though. Insurance covered both of these items for me. My neuro prescribed them as I needed them.
lorrieonline
lorrieonline
I just came across this info:
http://www.nejm.org/search?q=ocrelizumab

https://www.biosciencetechnology.com/news/2017/01/positive-ms-clinical-trial-results-support-new-treatment-approach
Anne8
Anne8
Well, couldn't make heads or tails of the original scientific article, but the second was better. Thanks for finding those Lorrie!
lorrieonline
lorrieonline
Hehehe... As much as I disliked my classes in statistics, they definitely were helpful. Although, these things are still difficult to understand either way! ☺
Anne8
Anne8
It's been approved in Europe! So, next month I'll check with my neuro when I see him. (I think it's the drug in the trial I was offered in 2010/2011. I declined bec it scared me, besides I was less advanced.) I hope I'm eligible still.
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