Multiple Sclerosis (MS) Support Group

This community is a place where members can discuss current events and weigh in on what's going on in the world.

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gsmith3059 01/14/2020

I have M/S and am wondering if anyone has ever had painful hair. It is similar to wearing your hair in a ponytail and then taking it down. The back of my head, the entire area hurts like that. Thank you in advance for your help.

mtrimble615 02/03/2020

I do to the point of not being able to lay my head on a pillow.
Recently dx, by MS neurologist, with occipital neuralgia.
Research and see what you think.
Heating pad and ibuprofen helps.
I am considering steroid injection

dxat59 02/04/2020

Also check for trigeminal neuralgia. It hurt just for the wind to blow my hair.

Gentle hugs, Linda

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