Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
This subject is difficult for me. I currently have a care partner, but I often think about what I would do if this partner got sick or passed on me, and I'd be alone. I'm sure God would help me develop the skills necessary to do for myself totally, but it is still difficult for me to think about. For those out there that have no partner for caregiving, what do you do? How do you manage when you are going through a relapse? What do you do when you don't drive anymore? Is it difficult to make a partnership with another member of your family or friends to aid you in your care? What tricks do you use to manage it alone? There is so much strength to be gathered from folks living alone with MS. Please share with us some of your personal experiences of maintinaing your independence that might help others with the same need.
As for me, I've slipped through the cracks.
My family (sans one brother) is all dead and gone.
I guess I could feel sorry for myself but over the years I've found (esp. after The Trip from Hell) that I am perhaps my own best company.
If it comes down to it, I can always go live elsewhere which is an option that I have that few have in the USA.
I try not to think about it because there is not much I can do about this reality.
So, I go on anyway and try my best not to think too much about it as there isn't a whole lot I can do to change things for my husband nor me. :(
Like your plan. I quite smoking in '92 but if I found out I was a short timer would go get a pack of Marlboros and a bottle of Jack Daniels. Mine is more the PPMS type without remissions. Frankly, I'm kind of jealous of those with remissions. I keep a picture of a cabin in Alaska on my desk to go go. It is not mine but is a good fantasy.
There are places, like "Advent Christian Village in Florida" http://www.bing.com/search?q=advent+christian+village+dowling+park+fl&form=APMCS1 People can sign over what assets they have, even if not very much. You first live in a house, then a condo, then the nursing home as disease progress. All living quarters are regularly checked. Meals supplied. Social events for those who can.