Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
how many of us cannot tolerate the abc drugs and have given up? and how has it affected you not taking them? and what have you substituted if any? thanks for your help in advance.
I forgot there used to be a "Me". Thanks for reminding me. I have had the disease so long that I almost forgot what I used to be like. Oddly, I remember that when healthy, I could do things much more quickly. My home health aide seems like a superwoman to me. The VA supplies one for 10 hours per week. That 10 hours is quite helpful, though I could use more help. She seems to perform tasks so much quickly than I ever could. Like you, I am sick of being sick. You are fortunate to have a family around you. I am responsible for everything and this can be quite overwhelming sometimes. I understand you are on Avonex. I did not care for Avonex at all. I had my worst relaspe while on the drug. Betaseron was better. Because I have been on all of the drugs, my disability has progressed slowly, and that has the effect of me not realizing that there was once a time I could walk without weaving, was safe around knives and an oven, or could even take a walk. I have learned several coping techniques. One must really think outside of the box. I have found many uses for Velcro. I also use a smart phone. And to enhance my cognitive functioning, I perform brain exercises EVERY DAY. There is a wonderful website. www.lumosity.com. Unlike other "Brain Games", these exercises were developed by neurologists, psychologists and other medical professionals. It is free. If you want to track your progress there is a fee, yet I think it is a great deal just to be able to do the exercises free of charge. I highly recommend it for everyone... not just those with MS. It would be great for students.
There is a "you' it's just hidden in the fog...lol
My fog is lifting. Much to the disappointment of my Neuro. But to hell with him, I have an appt with a new one July 2nd.
Like I said before...I'm just tired of it all, and KNOWING I feel BETTER without all this crap. I want "Me" back, I deserve it and so does my family. What have I got to lose? I have MS, its NOT going away, and I have to cope and do whats right for me and us...
Its for sure a personal choice for each of us. Nasty injections/IV's just arent my thing....LOL
I tried that Swank Diet. It was early in my disease, so the only thing it did for me was make me lose weight.... a LOT of weight. It was so funny when my father came to visit and was aghast at my appearance. I was so focused on how the diet would help with the MS, I really did not notice the weight until my clothes started to fall off. I am glad you are doing well.