Multiple Sclerosis (MS) Support Group

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gbugg7777 12/27/2011

HAS ANYONE HAD NEGATIVES ASSOCIATED WITH THIS DRUG EXACERBATIONS ECT....I HAVE BEEN ON THIS DRUG FOR NINE MONTHS WITH ZERO PROBLEMS OTHER THAN A LOW LYMPHOCYTE COUNT ... I STILL DEAL WITH MY DAILY PROBLEMS LIKE WE ALL DO IM SURE. BUT I HAVE HAD NO PROGRESSION..

deleted_user 12/27/2011

I have been on it for almost a year. No change for me, for the better or the worse. Same level of progression pattern as before, new lesions, etc. Doesn't seem to be helping or hurting. I've added monthly solumedrol in the past couple months. If my next MRI (3 months) shows continued lesion progression, we will likely switch to a chemo option.

lchoppel 12/28/2011

please visit the following url for more in formation:

http://www.dailystrength.org/groups/gilenya-is-it-for-u

deleted_user 12/28/2011

I have been on it for almost six months and I am doing great, no prgression at all.
I also love that it doesn't make me feel terrible like avonex did.

sherizi 12/28/2011

from the few varied responses to this post, it looks kind of like the reactions of being on this drug are similar to the reactions of MS in general. Varied. Some see differences, some do not. Some see progression slowing down, some do not.

I have to wonder. It the "being on a med." a good thing? Or not?
Seems to vary by each individual.
hmmm...

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