Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
Let me start by saying that I'm going to be whining a bit here.
Today I went to my fiance's neuro appointment with him. Since his MS is well controlled his appointment was pretty quick. Then the doc asked how I was doing (he was my neuro before I lost my insurance). We told him that my symptoms had improved a bit, but they have gotten worse in the last week. Since he had just gotten some new equipment and needed a guinea pig, he offered to do a BAER on me. After he finished and reviewed it he declared it to be "stone cold normal." When my fiance asked if or when the test should be repeated he said that whenever I have symptoms it should be repeated. Then he went on to say, "and since you have it in your head that there's something going on, you're going to have symptoms." Thank you very much, add him to the list of people saying it's all just mental (probably because of my history of depression).
I have an appointment scheduled with neurology at the VA on May 5, but I'm not sure I want to go. I don't know if I can handle having another doctor tell infer that there's nothing wrong with me and it's all in my head. Do they think I want to have constant vertigo and fatigue, dizziness, numbness, vision problems and memory issues? Like I said in a previous posting, I'm beginning to wonder if they are right. I don't know who or what to believe anymore or how to think.
Also, the neuro today said that if the VA tries to say I should have an LP, I should refuse. He seems to think that the MRI is the only thing that should be used to evaluate. He, also, tried to say that my problems may just be an inner ear problem and maybe physical therapy would fix it. I can see how the vertigo could be related to the inner ear, but how does that explain the rest of my symptoms.
I don't know what to do.
Today I went to my fiance's neuro appointment with him. Since his MS is well controlled his appointment was pretty quick. Then the doc asked how I was doing (he was my neuro before I lost my insurance). We told him that my symptoms had improved a bit, but they have gotten worse in the last week. Since he had just gotten some new equipment and needed a guinea pig, he offered to do a BAER on me. After he finished and reviewed it he declared it to be "stone cold normal." When my fiance asked if or when the test should be repeated he said that whenever I have symptoms it should be repeated. Then he went on to say, "and since you have it in your head that there's something going on, you're going to have symptoms." Thank you very much, add him to the list of people saying it's all just mental (probably because of my history of depression).
I have an appointment scheduled with neurology at the VA on May 5, but I'm not sure I want to go. I don't know if I can handle having another doctor tell infer that there's nothing wrong with me and it's all in my head. Do they think I want to have constant vertigo and fatigue, dizziness, numbness, vision problems and memory issues? Like I said in a previous posting, I'm beginning to wonder if they are right. I don't know who or what to believe anymore or how to think.
Also, the neuro today said that if the VA tries to say I should have an LP, I should refuse. He seems to think that the MRI is the only thing that should be used to evaluate. He, also, tried to say that my problems may just be an inner ear problem and maybe physical therapy would fix it. I can see how the vertigo could be related to the inner ear, but how does that explain the rest of my symptoms.
I don't know what to do.
It's not in your head..Something is wrong. Do the LP if they ask. Make a list of your symptoms..keep records from now on of your attacks.
Don't give up..
(Hugs) Mary
Same story again. So many of us have allready heard that. YOU know something is wrong, dont give up.
If you are going to the VA and they want to do a LP, do it. Do any test they want you to have then you have tests to look at if more are needed down the road.
Many of us have been in your situation, even me. On my second visit to the ER, a hospital business manager came down and insinuated that it was all in my head.
Thank God a couple days later, all my tests confirmed that it wasn't. I was lucky (or unlucky, take your pick) because I now had a medical label.
Life does become a little easier once you get tagged. I'm officially a sick puppy and I don't have to go through those hoops anymore.
Keep the faith, and hopefully, you'll get an answer soon. Peace always