Multiple Sclerosis (MS) Support Group
This community is a place where members can discuss current events and weigh in on what's going on in the world.
smathie2
I am lucky to be symptom free at the moment, but who knows how long that will last...
I will never be able to forget I have MS unfortunately, my right eye has permanent nerve damage from a horrible case of optic neuritis and my body is scarred from the direct line I had to have put into my chest during my time of diagnosis, not to mention all of the injection site reactions.
I am very grateful to have come back from a horrible onset of the disease to be where I am today, however I would just love to wake up and not move each part of my body slowly to make sure everything is working like it should.
Do you ever forget you have a disease with no cure? How long do you forget for? What do you do in that time?
I will never be able to forget I have MS unfortunately, my right eye has permanent nerve damage from a horrible case of optic neuritis and my body is scarred from the direct line I had to have put into my chest during my time of diagnosis, not to mention all of the injection site reactions.
I am very grateful to have come back from a horrible onset of the disease to be where I am today, however I would just love to wake up and not move each part of my body slowly to make sure everything is working like it should.
Do you ever forget you have a disease with no cure? How long do you forget for? What do you do in that time?
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There is time it is not in the forefront of my thoughts but it is always there...I would love to have a day I forgot, that might mean I am having a good day...or wait it could also mean that my memory loss is worse. Oh well I would still have a day off :)
This is the healthiest I have ever been and I don't know what it is like to be healthy. I wake up every day expecting for it all to be taken away from me once again. I do need support as well. I'm not bragging, I just want more perspective from others who have been to hell and back.
The healthier I am, the less I feel like my views or opinions matter here, and I'm just trying to find someone else who can get up and not worry.
Just because I am currently symptom free, there is still progression on each MRI I have every 4 months.
So, yes I do forget sometimes that I have MS.
Anyway, when I am lying down, I am normal. Until I have to get up to the bathroom over and over and over again.